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Celiac Diease

Posted , 4 users are following.

mark357
mark357

Hi gang.

First a little history; at the moment I am being treated for a possible Pernicious Anemia with 50mcg Cyanocobalamin with more blood test to follow and to include a test for Celiac Disease.

My symptoms are;

Neuropathic pain, shortness of breath, some memory loss, intermittent bouts of diarrhea, slight nausea and excessive fatigue.

Now if it is Celica Disease, what help am I to expect? I am already on long term sick and on the books at three different hospitals already.

So I would be grateful for any info regarding help and treatment to be expected.

Many thanks for your help.

1 like, 7 replies

7 Replies

  • Jennifer.M13
    Jennifer.M13 mark357

    Posted

    Hi Mark,

    It really depends on the severity of Coeliac Disease that you have. More than 50% of my extended family have Coeliac Disease but it varies in symptoms. My mother for example get bloated and an upset stomach when she has wheat whereas my cousin is really really bad and if she has the slightest bit of wheat she is hospitalized with nausea, diarrhea and many more serious symptoms. I hope for your sake you dont have it because it is a real bummer diet as you miss out on so much yummy food plus you seem like you have a lot on your plate already. Good luck! From Jenny

    • mark357
      mark357 Jennifer.M13

      Posted

      Thanks for your help Jennifer.M13, but no other family member has it. But if it does come back that I do have celiac disease, what (if any) help is there?
  • Pahcits
    Pahcits mark357

    Posted

    Hi, basic symptoms of celiac disease are diarrhea and weight loss.  Some others are Gas and bloating,Anemia or iron deficiency,Skin rashes, Headaches, fatigue, Joint pain tec. It is not fully understood what causes celiac disease. The only treatment for celiac disease is a strict gluten-free diet.

     

  • sue73
    sue73 mark357

    Posted

    If you do have coeliac disease, in a way you are lucky. The only treatment is a gluten-free diet for life. No drugs, no surgery, just no gluten (wheat, barley, rye). Your intestines will heal within a couple of weeks and you will feel better. GPs vary in the amount of monitoring they offer, but my other half has been diagnosed for 25 years and has no support – he doesn't really need it, he is just really careful what he eats and it becomes a way of life. 
    • mark357
      mark357 sue73

      Posted

      Thankyou for your help regarding this matter, but can I also ask, was your husband also tested for Pernicious Anemia?, as I am also been tested for this as well.
    • sue73
      sue73 mark357

      Posted

      When he was very young he was extremely anaemic and sometimes could hardly get out of bed. He was on iron pills for years, but that was way back when doctors weren't so aware of coeliac disease, so he wasn't diagnosed till he was 35 in 1989. Coeliac disease means you aren't able to absorb nutrients such as iron, calcium and some vitamins.
    • mark357
      mark357 sue73

      Posted

      Again sue73, thankyou for your help in this matter and have a Happy Easter.
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