Cellcept

Posted , 4 users are following.

I’ve talked this week about Being on Methotrexate and Humira. Today Dr took me off all that and start Cellcept twice a day an 5 mg prednisone. Has anyone had experience with Cellcept. I also have scleroderma which I was diagnosed many years ago but since RA I never had a serious problem with it.  So my hands are swollen and tight and stiff. That won’t change he says. I’ve never heard of this med so I’m interested if anyone has taken it. 

0 likes, 4 replies

Report / Delete

4 Replies

  • Posted

    Hey Regina I just did a quick google search of “Cellcept for RA” and that produced quite a few results that will possibly be of interest to you.  Good luck.
    Report / Delete Reply
  • Posted

    Hello Regina,  I don't have RA or Scleroderma but I do have experience of Methotrexate, which I took for 24 months before having to give it up & then Cellcept [Mycophenolate Mofetil] which ia also took for a similar length of time.  I restarted MMF [Mycophenolate Mofetil] a few months ago.

    This leaflet might help you

    https://patient.info/health/scleroderma-systemic-sclerosis

    And the following one

    https://patient.info/medicine/mycophenolate-mofetil-cellcept-myfenax

    With all these drugs, you need to take them for about 12 weeks before you notice any difference, the objective is to get you off the oral steroids.  They are used as 'steroid sparing agents'.

    What country are you in?

    Report / Delete Reply
    • Posted

      https://patient.info/health/rheumatoid-arthritis-leaflet

      The RA leaflet is also helpful reading.

      I was diagnosed with SS [Sjögren's Syndrome] in January this year, aswell as an autoimmune skin disease which I was diagnosed with officially, in 2011]  and the only 2 drugs suitable for me, are MMF [Mycophenolate/Cellcept]  or Rituximab which is a biologic given by infusion & very expensive.

      Report / Delete Reply
    • Posted

      Leaflets were helpful thanks. I am from upstate New York. I guess because both of the autoimmune diseases Cellcept must be the drug to take. I’ll try to stay positive.  I will probably seek out a specialist for the scleroderma. I had one years ago when first diagnosed but was able to keep it under control for 25 years. The RA must have woke it up. It is what it is. 

      Thanks all for info. 

      Report / Delete Reply

Join this discussion or start a new one?

New discussion Reply

Report or request deletion

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up