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Central Diabetes Insipidus and Headaches as a result

Posted , 3 users are following.

tracey42161
tracey42161

I would like to see how many people that have CDI had severe headaches before diagnosis and or still get headaches when their DDAVP wears off.  Doctors believe it is only a peeing problem. I myself suffered severe ice pick headaches until receiving DDAVP. PLEASE RESPOND if you have headaches from your CDI it would be great to get some numbers on this to show them so it can be included in the literature (no names required just yes I get headaches from my CDI).

1 like, 4 replies

4 Replies

  • courtnay26
    courtnay26 tracey42161

    Posted

    I get headaches all the time

    I think it got bad , potentially because of my thyroid

    meds the most

    now it's mostly thirst and dehydration

    oh, also when I eat gluten in bread

  • courtnay26
    courtnay26 tracey42161

    Posted

    dehydration can cause headaches

    but I'm glad your meds work

    • tracey42161
      tracey42161 courtnay26

      Posted

      Yes I’m very aware personally as well as I’m a dietitian. But doctors don’t seem to be as aware.
  • courtnay26
    courtnay26 tracey42161

    Posted

    just to make sure

    DI can be caused by a tumor in

    the pituitary or elsewhere.

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