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Pituitary Disorders

Also known as Acromegaly, Hyperprolactinaemia

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  • Testogel - manufacturing and supply issues

    After having three transfenoidal procedures for a Pituitary adenoma and a course of radiotherapy I am pleased to say I feel very well. However as part of my medication I have to take Hydrocortisone, Thyroxine, and Testosterone in the form of Testogel. Unfortunately when collecting my last repeat prescription...

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  • After treamtment and diagnosis

    I have been diagnosed with a pituitary tumor. I have been put on cabergoline and bromocriptine. Currently I am taking bromocriptine, and it has significantly dropped my prolactin levels. I'm finally feeling better then I have felt since I've been diagnosed. Unfortunately it messed up...

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  • Prolactinoma

    I was originally diagnosed last May with Prolactinoma that stemmed from not getting my period for over 6 months with off and on again headaches.  My prolactin level at that time was 200ng.  Everything was somewhat getting better until a month ago.  My headaches/migraines are nonstop and...

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  • how were you diagnosed?

    Dealing with a pituitary issue I know I've had to do all my own medical research to figure it out Can you tell me how you learned about your diagnosis thanks

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  • Do my bloods suggest hypopit?

    Hi. I'm a 19 yr old girl who's had a large amount of non specific symptoms for about 7 yrs that have been diagnosed as CFS. I've known that I have hormonal issues for about 3 yrs now, so last May I came off my BCP and have discovered my periods are irregular. I got my GP to do my hormone...

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  • Mix of symptoms and test results please help

    Ok I will try not to make this long bear with me. Age 34 Sex Female Previous health issues Emergency c section 2014 History of little or no periods Endometriosis Endometrial ablation Tubal (no clamps) Gallbladder dysfunction (9%) Colon polyps Ovarian cysts Thyroid nodules (1 non diagnostic not removed)...

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  • Secondary Hypothyroid, possible Cortisol concerns

    So last year, after 2 years of being told that my symptoms were “impossible” (20lb weight gain in a couple months), from pregnancy, then postpartum...I was finally diagnosed with Hypothyrodism once my T3 came out low.  Started seeing an Endo, who did labs and my cortisol came back at 5.75. I was...

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  • Central Diabetes Insipidus and Headaches as a result

    I would like to see how many people that have CDI had severe headaches before diagnosis and or still get headaches when their DDAVP wears off.  Doctors believe it is only a peeing problem. I myself suffered severe ice pick headaches until receiving DDAVP. PLEASE RESPOND if you have headaches from...

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  • New symptoms, not sure what to think of it

    I've had headaches and migraines my entire life. Started having occasional episodes of passing out since 4th grade. Pituitary tumor found at age 16. Doctors have blown off my issues constantly ever since. I'm now 33, had tubes tied after having my second kid. Usually my periods have always been...

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  • Pituitary tumour psychological symptoms

    I’ve had two blood test indicating high prolactin levels and I display most symptoms of a prolactinoma, I’m not getting an mri for another 3 weeks and I’m feeling rather anxious to understand what’s going on in the even I do have one.  I’ve read a lot about the psychological symptoms of a prolactinoma...

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  • Pituitary symptoms but normal labs

    Pituitary symptoms but normal labs I need help. I was recently diagnoised with empty sella after I have had several years of undiagnosied or misdiagnoised illnesses. In 2007 I started with headaches, Hair Loss, Vision Loss, Abnormal menstral cycles, low calcuim High PTH and they finally diagnosed...

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  • Pituitary tumor

    Hi All I've been Diagnosed with a 7mm Pituitary Tumor in August this year after having several blood test showing that I had High chloride Levels and High Sodium Levels since march I have seen my Neurosurgeon but hasn't really said much other than Having another MRI done before I see them in...

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  • DDD + Fibromalgia chronic pain patient for 17 plus years

    I have had 6 severe lower back spasm attacks within the past 90 days. And I have stopped going to the E.R (hospital)since being labeled as a "drug seeker" and gaining a self medicate mentality due to the sheer stupidity that Our too much relied Medical Physicians are being taught before...

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  • Pituatry tumour

    I’ve been diagnosed with a 8 mm prolactinoma but it’s causing me to have so many other problems I just want it out I’ve tried cabergoline but that made me feel awful I just want it taken out but I don’t think doc will probably more meds thing is with the meds it will never go cause once u stop taking...

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  • Any cure for acromegaly not surgery pls

    I was diagonised with Acromegaly January,2015 since then i was also diagonised with diabetes and i am always having severe knee pains with head ache time to time and i am also lossing my eraction as man even when i wake up in the morning. I complain this problem to my doctor but he told me that they...

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  • amenorrhea 2 years after 4 periods

    this is going to be a longgggg post so I need a willing audience first... looking for as much help/advice as I can get, particularly if you are interested in female hormones or endocrinology. I will post the details once I know atleast someone will be reading it! Thanks in advance  Btw - 17 year...

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  • Testogel, making me feel unwell?

    I'm a month in to using 5mg of Testogel daily, and I believe it is causing me to feel unwell mentally. Is it the Testogel itself, as in, would a different form of supplement be any better? I'm 55, my level should be .225, but when I was first tested, it was only .17!

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  • Prolactin levels fluctuating?

    May 18, 2017 : 198.4 ug/L - Dostinex 2 pills per week June 27, 2017 : 71.3 ug/L - Dostinex 2 pills per week July 25, 2017 : 91.2 ug/L - Dostinex 3 pills per week I don't understand why my prolactin has gone up when I increased the dosage here. This is so frustrating and I am wondering...

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  • Help with prolactinoma/rathke cleft cyst and headaches

    Need some advice. Since last year I was diagnosed with either an 8mm prolactinoma or rathke cleft cyst. The consultant is not sure. I have been taking cabergoline weekly which brought my prolactin levels down quickly and all the side effects from the that went very quickly. My issue now is that I am...

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  • High prolactin levels and treatment?

    Last year my blood tests came back twice with high prolactin levels and was referred to a specialist but never received the letter. I want to try and get pregnant and read that high prolactin can stop you getting pregnant, can you not get pregnant at all if its high? I still have regular periods, they...

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  • Mr Nivek Yecal

    Hi all, i am 67 next month and suffer with Arthritis in my knees, hips, thumbs and for the past few months i have also been suffering with it in my back too , i also suffer with sciatica as well as other health proplems , 4 years ago i was awarded the PIP standard rate after being awarded 11 points,...

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  • Cabergoline side effects

    Hi, I have been diagnosed with a prolactinoma for 4 years. I had been prescribed Cabergoline. I have been having these symptoms losing my balance, lack of strength and joint aches and pains. My consultalt has suggested that I discontinue using Cabergoline. My symptoms should...

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  • Sweating back of head

    Since having surgery (2011) I sweat easily starting at the base back of my head and I get hot very quickly. Does any else have this problem? I have Craniopharyngiomas, diabetes Insipidus and adrenal insufficiency after removal of a tumor on my pituitary.

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  • MRI and insurance. Help

    My insurance is not approving my MRI request that my doctor sent in so right now it is in appeals and I was wondering if there is anything I can do in the mean time. I keep being put on new medicine but I feel the root of it all is the high prolactin level. Please help. Thanks

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  • Prolactin normal levels

    Been doing some research and I can't find a definite answer to what is the normal range for prolactin levels. When first tested I was at 141.9 then was taken off of risperidone and it's dropped to 43. My doctor said it's still elevated so ordered an MRI. Just would like to know how elevated...

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  • Had surgery, now my prolactin levels are back up again

    I had surgery for my pituitary tumor and the Doctors thought they got everything but when I just went in for bloodwork my prolactin levels were 84 (it was 25 at the hospital the day after surgery). Does this mean the tumor came back? I am getting an MRI later this week. 

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  • Pitutary tumours

    Iam 30 years old since the age of 22 i suffer from headaches that even has took me to emergency. I was recently few months ago diagnosed pitutary tumour . Well i wasn't shock because i knew something was wrong with me but rather feel overwhelmed how much time I spent visiting Drs. One problem...

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  • High levels

    I've been on taking risperidone for 3 years and nothing seems to be getting better. Been put on other medications for my anxiety and depression but during these 3 years I've been very fatigued, have irregular menstrual cycles that doctor couldn't explain. Finally my psychiatrist ordered teat...

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  • Prolactinoma and palpitations?

    Hello all, I've just been recently diagnosed with a prolactinoma and have been getting some pretty regular palpitations. I had them for a few months last year too, before my diagnosis, and they went away by themselves. I had ecgs and a monitor and everything seemed OK. But they're back now,...

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