Does anybody have a prolactinoma

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Does anyone here have a prolactinoma and if so have you ever suffered from sleep problems? 


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  • Posted

    Hell yes,  major issues I can fall asleep usually  but I wake up every night at 2 or 3 depending on the time change I have been looking into Cortisol levels etc.
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    • Posted

      I second the opinion of getting cortisol checked, especially if you find it hard to get going in the morning combined with difficulty getting to sleep. Melatonin can help short term, but if you have cortisol issues you will need an ACTH simulating test to determine the best course of action. The prolactin may not specifically be causing the problem, but the tumor can cause other endocrine dysfunction due to its size or pressure it is putting on surrounding pituitary tissue.
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  • Posted

    I had one diagnosed 30yrs ago was put on meds of either paroled or bromocriptine (generic) it brought my levels down to acceptable and shrunk my tumor minimally I will be on this low dose my whole life which is fine because it keeps my levels down and they now call it a pituitary adenoma since I don’t produce prolactin anymore.  The meds were a little tough to get used to but the Dr started me out very low and slow till I acclimated. Now it’s just like taking my morning vitamin. I hope yours responds as well. Keep us posted.  As for sleeping, I can’t say it’s from the pituitary issue because I had it before I knew about any pituitary problems. But yes I wake after 3 hrs of sleep and go back to sleep ( if I’m lucky) to wake up 3 hours later again.   I wish you well on really bad sleepless nights I have to take an ambien. 
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