Need advice!!

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I'm 41, had total hysterectomy last year and found a cyst on my pituitary gland last year. My hormones can't regulate even though I take hormone replacement therapy. The anxiety, headaches, dizziness, blurry vision, fatigue, etc etc is killing me slowly. I used to be one of the most energetic people ever and now it takes the life of me to do anything. I'm having a second MRI to Che k for growth. Can that cyst be causing me not to level out? Any suggestions? I'm scared to have it removed but I think this is the culprit of my on going issues. Has anyone had the surgery? Do you feel better? i would be ever so grateful for anyone who's gone through this to share their experiences. Thank you soooo much!!!

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  • Posted

    Hi I’ve had a pituitary Tumor for some 20 years now, although I haven’t had it removed, lots have. I took medication, bromocriptine and the carbagoline, read the story of Russel Watson the singer , he had a pituitary Tumor twice and had it removed, it didn’t stop him from performing. At present I have been off meds for approx 5 years as they say it’s none producing, I had an MRI scan recently and they said my levels are fine. I had quite a lot of what you describe at the begining. My advice is too not worry too much even though it’s hard and go with what they suggest, as far as I remember they will only remove a pituitary Tumor, if it’s over a certain size. But try not too concern yourself too much as anxiety could possibly make you feel worse than you really are. Take care, and good luck with your scan.
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    • Posted

      At first I took bromocriptine ,for me it worked after about 5 days and I felt better than I had done. Some people have problems with side effects, fortunately I had none. I was on this for some 15 years taking 2 per day. I was then put onto carbagoline which I took once per week. The only thing I can honestly say is during all of this time the only side effect I had was constipation, which is a side effect of these drugs, other than that I suffered no other, but that's not always the case. Good luck and best wishes

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