Central Retinal Vein Occlusion

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I have CVRO and have an appointment in 2 weeks to have extensive test done to determine the best prodcedure for treatment.  They doctor says they may go with VEGF or most likely Laser treatment.  Has anyone had the laser treatment and if so was it successful?  From everything I've been readling sounds like either treatment is a toss of the nice.  Any input on this would be appreciated.  Thans

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  • Posted

    Hi, Chrome:

    I am not familiar with either treatment for CRVO that you mention.  Has the doctor considered shots of Lucentis?  Perhaps there is a reason that makes you a non-

    candidate for these shots?

    I am having the shot in my eye every other month now, and my retinologist tells me

    that I am one of the lucky ones for whom it is working.  It seems as if not everyone has success with this treatment.

    I wish I could be more helpful, but I suggest that you do research and learn as much

    as possible about these treatments and their rates of success.  Knowledge is always

    good to have.

    Beverly

     

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  • Posted

    Hi. I have also had injections of Lucentis - 2 so far - the first one worked well and the swelling came back after a month (the drug only lasts a month) but after the second injection, I seem to have had some damage to the retina/vitreous humour - I've now got a black ring which distorts/limits the vision. I was hoping it would clear but it hasn't. I'm back at the eye clinic tomorrow, so will be interested to see what my consultant suggests- don't fancy another jab!  Apparently there is another drug they can inject - but it has worse side-effects! 

    (Beverly, I did check and my consultant is a retina specialist - seems to be well though of.)

    Good luck with your investigative tests, Chrome1955 -let us know how it goes!

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    • Posted

      Thanks for the reply Alison.  I don't think my doctor is going to do the injections but some kind of laser treatment.  I will let you know how it goes.
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    • Posted

      Hi, Allison:  I am glad your doctor is a retinal specialist.  Let me know what 

      he does next.  Is it due to the damage in the r/v humour that he does not

      want to give you the 3rd shot, which is the usual beginning schedule of

      shots to determine if they will work?

      Beverly

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    • Posted

      Hi Beverly

      i'm off to the eye clinic tomorrow morning.  He hasn't said anything about the third jab - he was assuming I would need one by now - but I'm very reluctant, because of the damage which I'm sure was caused by the last one.  My sight hasn't cleared at all this time and I can still see a ghostly black ring if I look at a White wall or close my eye! I am really fed up with it - I thought I would have compensated for the loss of vision by now but I still find places like supermarkets rather overwhelming.  Really hope I get some answers tomorrow!

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    • Posted

      Good Luck with this eye appointment.  Let me know what you learn.

      I surely hope you will get some positive news an treatment.

      Beverly

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    • Posted

      Thank you all for your comments.  My appt is 2-4-15 and I definately post what I find out, what happens and my results.

      Mark

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  • Posted

    My visit to the eye surgeon went pretty good all things considered.  He confirmed that I have a Central Vein Occlusion along with Macular edema in my right eye. He told me that we caught it early and I still have 20/20 vision in that eye. The treatment is 3 injections of what they call VEGF and then a laser treatment to cauterize some veins at the back of the retina to keep them from bleeding into the eye.   They are not bleeding yet but they on the verge of doing it, so this is more a preventive step.  The injection I received only took about 2 seconds and early did not hurt.  It felt kind of like a quick light mosquito bite.  He also told me that hypertension does not actually cause this problem but can make it worse and for some reason many people have CVO have high blood pressure and or diabetes.  I do have high blood pressure but it has been under control since I was first diagnosed with it, it is typically 120/80 almost every day.  He explained to me, in my case it is probably more due my age (I’m 59).  He said the veins and capillaries in the eye are like a bowl spaghetti noodles, very interwoven.  In my case some of them have become sort of brittle, not as pliable as they should be and when that happens, they begin to stick to each other and that is what starts causing a blockage and it gets worse as time goes by.  I hope this not too much information and is helpful to some of you
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