Cerebral Venous Thrombosis

Hi everyone,

I'm 22 years old and had what i thought was my first 'migraine' about a month ago, i was off work for 2 weeks and was vomiting for about 4 days straight. Once the 'migraine' felt better and i went back to work i gradually started getting double vision when driving or looking at things from a distance. i went to the opticians about a week after my migraine had stopped and he immediately referred me to A&E due to having raised optic disks, but wasn't overly concerned. I was then admitted to the ophthalmology unit where they found splinter haemorrhages in my brain. I was then transferred to the Acute Medical Centre where my CT scan came back clear. After about 3 days in the centre (i was lucky enough to go home each night and apart from double vision felt like there was nothing wrong with me). I then had an MRI which picked up the thrombosis in my left transverse sinus extending to the sigmoid, aswell as thrombosis seen in the cortical vein.

I was put on Apixaban tablets for 24 hours before receiving a call from my doctor telling me that my haemotologist made it very clear i wasn't to be on tablets and was put onto Tinzaparin daily injections.

I have been on the injections for about 10 days so far, but i was wondering how long was it until people received follow up appointments? Due to where i live only having one neurologist i only saw him when i was in the Acute Medical Centre when he sent me for an MRI, i haven't spoken to him since i've had my diagnosis.

In addition to when you had your follow ups, how long did it take for the clot to go? Before this i would train at my crossfit gym 6 days a week, did anyone ask how soon could you start exercising again? (i understand it would obviously be gentle exercise for a while i guess).

Due to it being so hard to find information on CVST i'm hoping someone with a similar experience may be able to answer some questions for me please.

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