cervical spondylosis

Posted , 14 users are following.

Hi all, it's 2.33 in the morning and my demon is keeping me awake yet again :shock: :shock: I was first diagnosed with cs when i was 26yrs old, local GP treated me for a frozen shoulder at the time but as it lasted 18months he decided to send me for X-ray which then lead to MRI = cs diagnoses. with the help of medication my demond slept for a few years with only an occasional flare up that would last for a couple of weeks. In my mid 30's it raised it's ugly head again :x a little worse than the first flare up, thought i was going insane with the pain and general overall affect this condition was having on my life. yet another MRI showed a worsening, affecting c4,5,6. spent a small fortune on acupuncture that did help with pain relief and helped me to relax. I went to see a master who taut acupuncture in the next village, sadly he has past now. 5yrs ago yet another flare up, more tablets, more scans, more physio, more ortho consultants. 6 months ago it started again, OMG just cut my right arm off and my head!!!in oct 09 another MRI showed c4,5,6,7 T1,2 affected, I work in OT in my local Hosyi and have lots of support from my bosses and colleagues which has been fab and for that i am most humbled. this time my demon has given me to much to bare :evil: the norm of pain constant head aches, numbness, pins & needles, twitching, sleepless nights, fatigued. OMG I could go on and on, but you all know the story.Awaiting to see another ortho consultant in DEC 09, God help he is more sympathetic than the others, lol... :roll: I feel it may be time to try some thing more invasive than tens, medication, acu, neck pillows, yoga, tears and screaming. I cant believe I only found this site today after my boss said \"enough lovely, go home and rest\". I have been reading ppl's stories and experiences all afternoon and to be honest, I have found... not a solution or physical relief but emotional relief, comradeship, all knowing how it feels empathy. for that I am soooooooooo great full. My husband has been disabled for many years through a skeletore malfunction, so is sooo in tune with my emotional state, I could cry for Wales on a bad day. :oops: :oops: lol. I look forward to making some friendships, comrades and empathises now I have found you. take good care all. xxMacca

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  • Posted

    :shock: Hay were has every one gone, snuggling up to keep warm !!! my step sons bought me a fantastic heat gel pad for xmas. all you have to do is click a little mettle coin inside the gel pack and it heats instantly, i have one designed for my neck and shoulder bet you can get them for any part of your body, great relief when getting stiff. You can buy online if you have been house bound like me since this cold spell has started. smile stay warm and safe. macca. xxxx

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  • Posted

    Vicki

    That's strange I have exactly the same thing except on the left side, also a tender spot on the left front bit of my head, as though someone has pulled my hair very hard! Haven't got the hand bit though. I come from Kent too, it must be the weather!

    Chris, Macca and Flying Santa I hope things improve for you, I'm not on any meds (well apart from 2.5mm felodopine for blood pressure) so can't help there.

    X

  • Posted

    Vicky, my neck and head problem has developed into shingles! I wondered if yours has changed. Went to the GP today, he gave me antiviral tablets, the shingles are just on my head and forehead.

    X

  • Posted

    Hi all, how you all doing????? me not sure how much more of this i can take, every other day a new pain arrives.. consultant at pain clinic promised he would get me back to work but i'm still waiting for pain injections, that was the week before Christmas...... Dr's just keep upping meds whilst i wait & wait &wait.. :cry: couldn't move my left arm up yesterday today it seems to be more concentrated on my lower back..... finding my vision a little wired today, not sure if its the meds or connected, had 20 20 vision for the past three years after eye laser treatment.xx love to all macca. xxxxxxxxxx
  • Posted

    hi macca i am sorry to hear you suffering so much, i could be reading about myself. i am waiting for my mri , a thoracic, and cervical. my gp is next to useless, everything i go to him for now he puts down to my neck and nothing can be done. i remember asking my optician if my eyesight or lack of it could be down to my problems with my neck, apparently not so.thank god for this site what would we do without it for a good moan, i am always here if you need to chat,,,,,, chris xxx
  • Posted

    Chris I wouldn't agree with your optician, pain, especially the intense variety from CS, can affect your eyesight. I certainly believe my own eyesight has been affected. The question though is that due to degeneration of the eye or the brain not being able to understand due to too much else going on?

    Your GP sounds like the usual mantra giver, 'All pain is reffered pain', utter rubbish. Multiple illness is surely very common and to ignore the possibility I would have thought is dangerous.

    And a good moan is very good for you, get it off your chest!

    Paul

  • Posted

    [quote:faabad60da=\"chris215a\"]welcome macca to our hell, sorry to say that but it does seem that way sometimes. i have had this since i was 31 and i find it comes in waves, i am now 49 and have had some really rough few weeks, mainly in my ribs, it feels like they are being crushed. my mum thought it was asthma, but no apperently it is the muscles hardening which makes expansion of the lungs really bad. keep in touch with the site and you will be suprised with the advice you can get. keep your chin up and keep well. bye for now ,,,,,, chris xxx[/quote:faabad60da]

    my cs is effecting the bottom of my neck and shoulders,hurts when i look down. it seems to be making my asthma worse.

  • Posted

    Hi all, final had 6 total pain blocking spinal injections on Thursday. Friday and Saturday really thought it had all gone wrong as i was unable to control the most sever pain, had a bit of a break through yesterday when the pain was bearable but was most amazed when i could walk up right for the first time since November 2009. Just a little niggle this morning but hoping that will go as the day goes on. Down side is the pain consultant would not give me injections in my neck and shoulder at the same time, saying the injections where to strong to put top to bottom of my spin, and i still have to take the oral pain killers until they review me in 3 months. Can any one who has had these injections reply to this message as in the evenings i have the most terrible heavy legs i think it is a heat i feel in knee and ankle joints ??? is this a side affect of the injections ?? sorry about the description but this is a new feeling to me even though i have had SS for some time now. I also have been dreaming a lot, some of which are very bizarre. Hope you are all well, look forward to your replies. Love macca. xxxxxx
  • Posted

    :cry: hi all long time no hear...lol not really laughing as went back to work in may and the pain in my lumbar region was manageable but this last week has been an arse :cry: it seems the injections are wearing off and the Gabbapentine is not enough on its own any more... been very tearful as the pain seems to have got the better of me so cross with my self for letting it get on top again. Awaiting app for 2nd opinion was hoping to see Neuro surgeon this time as no treatment from spinal as they wont touch me.. help. xxxxxxxxxxxxxx
  • Posted

    Hello all sufferers and Macca, I hope I can help other people by sharing my experiences. I am sitting here today feeling so fed up with this cs I have. Three years ago I was a workaholic running my own very successful business employing 4 people full time. I went out to pick up parts one morning and a car pulled straight out in front of me, I hit it at 50mph, air bag went off. The next day the pain started. I was fortunate enough to have legal expense insurance. I was sent for physio, short term relief. I was sent for ultra sound on my shoulder and neck, nothing found. I was started on co-codamol, then solpadol, which masked the pain mostly if I did nothing but I had a business to run and 4 employees who counted on me to bring home the bacon. I was then sent to a spinal surgeon-consultant. A young man who had good bed side manner and understood what was happening. He sent me for an MRI scan. This reveled I had a rotor cuff tear and cs on the left hand side of my neck. After a year and a half pain outbreaks were so bad that my GP proscribed morphine. This brought pain under control by rendered me incapable of working. My business was in ruin. My manager had to lay off the staff as the business could not afford to pay them. In May 2010 I lost everything. Still the pain persisted, I was tried on many things from diasapan, MST, amitriptyline, nortriptyline, and now after three years my GP has tried me on Duloxatine. This drug is a nightmare for me, so many side effects and not complete control of pain. I am now coming off of it slowly and have to rely on solpadol to keep the pain in my shoulder, neck and head at bay. So fed up I cant tell you. Don't drink much alcohol, don't smoke or do drugs. Pain free is all I want. To add insult to injury the opiates have increased my ibs problems and brought on heamoroids, they are going to operate on them thank god. I don't think I could take the pain of my cs and hems for very long. The only relief non drug related i got was from my chiropractor. I would need to see her once a week at £35 a time it is out of the question. No home, no future, and trying to survive with everything else on £65 a week from the government. Eventually I will get paid out from the insurance claim but how do you rebuild your life when you have lost everything including your health. I would dearly love a partner but who wants to take on some one that's not a lot of fun most of the time. I have hit rock rock bottom. My mental health councilor said that the only way forward is to come to terms with the fact that you are not going to be able to do your job anymore and that you will have to find something desk bound to do. So you see like many of you out there who are suffering the same, eventually you just run out of options and steam, thank you for listening to me, good luck to us all. Regards Tony Chrome
  • Posted

    My thats a sad story Tony Chrome - Bob Dylan once wrote \"when you've nothing, you've got nothing to lose\"

    Come on Tony mate - make the new year into something special for you - you've had all you're bad luck. you must always believe that things will get better.

    Regarding the pain, you have two pains, the loss of your business and the loss of your health but your health is the most important of the two. You really dont want to be \"drugged up\" by all the stuff these doctors give you. You have to find a combination of drugs that react to you personally, because everybody is different.

    I found that \"Tramadol\" was a great help to me, but only for short spells - but it was better than nothing.

    I've been hurting for 10 years Tony, and I lost the sight in my left eye. but I fought back and if you read my posting on \"Disability Benefit\" you can see what a fight that I had with the State to convince them that people with CS should be classed as disabled.

    I think that you should go down this road, if you can get the benefit it makes life so much better - people would understand why you may be getting a bit irritable at times, and you're entitled to be, because you're hurting CS is a rather nasty condition which manifests itself in so many different ways as you can see by all the postings of other sufferers.

    You're not alone Tony.

    All the best for the future and I really hope that the pain eases.

    Alan D

  • Posted

    Hi Tony, so very sorry to hear of you dilemma but as you will read on this site we are all suffer's and can really empathise with you and your financial situation. ALan is right he has had a long hard battle but it has appeared to make things easier for us to get support in the form of DLA and the added benefits that come with it. I applied in December 2010 thinking I wouldn't get it on my first ask...... Last week I had my letter giving me DLA & mobility, whilst this payment in NO way makes up for the pain and suffering we go through it does help with the stress of finances and is not means tested.

    I have just had my assessment from Occupational Health to see if I would at some point be able to return to work, I have to come to terms that I will not be able to return as an Occupational Therapy support worker in my local hospital but am keeping my fingers crossed that the NHS will have some form of occupation for me, the doc i saw has given me a safety net of coming under the disability discrimination act so all fingers crossed.

    Last month (feb) I had an epidural to see if that would help with pain... it does to a certain degree (if i sit on my arse) but if i try to do to much on a good day.....woo hoo look out the next couple of days. I have very emotional and tearful days but i think this is a form of morning for my previous life ( has CS since the age of 26, now 47) differing degrees of flare ups but now it has been persistent since 2009 and affects my mobility, vision etc. etc . I have found that stress has a massive part to play in my personal condition so I am trying to find different ways of using relaxation as part of my pain control along with MST, Gabapentine and Co-codamol. Ok thats it from me for now as starting to hurt in neck and right arm so will look in from time to time to see how your doing. Chin up and stay in touch, you know what they say about a troubled shared!!!! macca. xx

  • Posted

    Looking at this forum after a long time when i had Cervical Spondylosis in 2008. Now i am doing good, no pain in the neck and i able to do my job where i sit in front of the computer all day.

    The pain comes back only sometimes in my neck when i strain it a lot.

    But not the way i used to feel in 2008 where my left hand and my shoulders would hurt, my god i understand each and everyone here as it only takes someone to go through that pain to understand it.

    A proper diet and good medicine can get you out of this problem.

  • Posted

    Hi all, well epidural hasn't worked and as I am having soooooooo many new symptoms my Gp has referred my to a neurologist for tests to rule out or confirm MS!!!!

    So back to long waiting lists, got my self a mobility scooter two wks ago.... most fun I have had in years, on a good day I can now go out independently to my village shops. There's only a few i can ride around but that's ok at least I'm out. Meeting with HR and OT boss next wk to see what is to become of me and my work life?? so fingers crossed for that one but I have now excepted i will no longer work In oT :cry: but hay ho, there is another life out there for me :o . Trying to stay positive as the pain s much better when i do. If your having this beautiful weather as we are in Wales, enjoy. Catch you all soon, till then stay healthy as poss, warm and positive.

    loves to you all Macca. 8)

  • Posted

    :D Hi guys, Had 2nd epidural on 23rd Dec 2011. and it has worked, i am numb from my wast to my knees but for the first time in many years ....I AM PAIN FREE. still taking lots of meds but pain free is a bizzar feeling. Long may it last. wishing you all a Happy 2012.xxxxx

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