cervical spondylosis
Posted , 14 users are following.
Hi all, it's 2.33 in the morning and my demon is keeping me awake yet again :shock: :shock: I was first diagnosed with cs when i was 26yrs old, local GP treated me for a frozen shoulder at the time but as it lasted 18months he decided to send me for X-ray which then lead to MRI = cs diagnoses. with the help of medication my demond slept for a few years with only an occasional flare up that would last for a couple of weeks. In my mid 30's it raised it's ugly head again :x a little worse than the first flare up, thought i was going insane with the pain and general overall affect this condition was having on my life. yet another MRI showed a worsening, affecting c4,5,6. spent a small fortune on acupuncture that did help with pain relief and helped me to relax. I went to see a master who taut acupuncture in the next village, sadly he has past now. 5yrs ago yet another flare up, more tablets, more scans, more physio, more ortho consultants. 6 months ago it started again, OMG just cut my right arm off and my head!!!in oct 09 another MRI showed c4,5,6,7 T1,2 affected, I work in OT in my local Hosyi and have lots of support from my bosses and colleagues which has been fab and for that i am most humbled. this time my demon has given me to much to bare :evil: the norm of pain constant head aches, numbness, pins & needles, twitching, sleepless nights, fatigued. OMG I could go on and on, but you all know the story.Awaiting to see another ortho consultant in DEC 09, God help he is more sympathetic than the others, lol... :roll: I feel it may be time to try some thing more invasive than tens, medication, acu, neck pillows, yoga, tears and screaming. I cant believe I only found this site today after my boss said \"enough lovely, go home and rest\". I have been reading ppl's stories and experiences all afternoon and to be honest, I have found... not a solution or physical relief but emotional relief, comradeship, all knowing how it feels empathy. for that I am soooooooooo great full. My husband has been disabled for many years through a skeletore malfunction, so is sooo in tune with my emotional state, I could cry for Wales on a bad day. :oops: :oops: lol. I look forward to making some friendships, comrades and empathises now I have found you. take good care all. xxMacca
0 likes, 52 replies
macca
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HC58
Posted
That's strange I have exactly the same thing except on the left side, also a tender spot on the left front bit of my head, as though someone has pulled my hair very hard! Haven't got the hand bit though. I come from Kent too, it must be the weather!
Chris, Macca and Flying Santa I hope things improve for you, I'm not on any meds (well apart from 2.5mm felodopine for blood pressure) so can't help there.
X
HC58
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macca
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chris215a
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Paul_H
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Your GP sounds like the usual mantra giver, 'All pain is reffered pain', utter rubbish. Multiple illness is surely very common and to ignore the possibility I would have thought is dangerous.
And a good moan is very good for you, get it off your chest!
Paul
Guest
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my cs is effecting the bottom of my neck and shoulders,hurts when i look down. it seems to be making my asthma worse.
macca
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macca
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Guest
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Guest
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Come on Tony mate - make the new year into something special for you - you've had all you're bad luck. you must always believe that things will get better.
Regarding the pain, you have two pains, the loss of your business and the loss of your health but your health is the most important of the two. You really dont want to be \"drugged up\" by all the stuff these doctors give you. You have to find a combination of drugs that react to you personally, because everybody is different.
I found that \"Tramadol\" was a great help to me, but only for short spells - but it was better than nothing.
I've been hurting for 10 years Tony, and I lost the sight in my left eye. but I fought back and if you read my posting on \"Disability Benefit\" you can see what a fight that I had with the State to convince them that people with CS should be classed as disabled.
I think that you should go down this road, if you can get the benefit it makes life so much better - people would understand why you may be getting a bit irritable at times, and you're entitled to be, because you're hurting CS is a rather nasty condition which manifests itself in so many different ways as you can see by all the postings of other sufferers.
You're not alone Tony.
All the best for the future and I really hope that the pain eases.
Alan D
macca
Posted
I have just had my assessment from Occupational Health to see if I would at some point be able to return to work, I have to come to terms that I will not be able to return as an Occupational Therapy support worker in my local hospital but am keeping my fingers crossed that the NHS will have some form of occupation for me, the doc i saw has given me a safety net of coming under the disability discrimination act so all fingers crossed.
Last month (feb) I had an epidural to see if that would help with pain... it does to a certain degree (if i sit on my arse) but if i try to do to much on a good day.....woo hoo look out the next couple of days. I have very emotional and tearful days but i think this is a form of morning for my previous life ( has CS since the age of 26, now 47) differing degrees of flare ups but now it has been persistent since 2009 and affects my mobility, vision etc. etc . I have found that stress has a massive part to play in my personal condition so I am trying to find different ways of using relaxation as part of my pain control along with MST, Gabapentine and Co-codamol. Ok thats it from me for now as starting to hurt in neck and right arm so will look in from time to time to see how your doing. Chin up and stay in touch, you know what they say about a troubled shared!!!! macca. xx
RajFromIndia
Posted
The pain comes back only sometimes in my neck when i strain it a lot.
But not the way i used to feel in 2008 where my left hand and my shoulders would hurt, my god i understand each and everyone here as it only takes someone to go through that pain to understand it.
A proper diet and good medicine can get you out of this problem.
macca
Posted
So back to long waiting lists, got my self a mobility scooter two wks ago.... most fun I have had in years, on a good day I can now go out independently to my village shops. There's only a few i can ride around but that's ok at least I'm out. Meeting with HR and OT boss next wk to see what is to become of me and my work life?? so fingers crossed for that one but I have now excepted i will no longer work In oT :cry: but hay ho, there is another life out there for me :o . Trying to stay positive as the pain s much better when i do. If your having this beautiful weather as we are in Wales, enjoy. Catch you all soon, till then stay healthy as poss, warm and positive.
loves to you all Macca. 8)
macca
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