Cervical Spondylosis Explored

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Hi fellow C/S'ers.

I wanted to open a new discussion, to allow some space for those with Cervical Spondylosis (C/S) to simply express their opinions (including my own obviously) on how they think the C/S dynamics,  and its progress over time actually results in the changeable symptoms they experience.  I have my own ideas about how it all combines to produce the daily struggle we endure,  but I'm also aware that opinions differ,  and it might be a wise thing to do to consider other opinions,  so that I get a more balanced overview.  Same for everyone, I suppose.

I've had C/S a long time, over 30 years,  and I've many of the different phases that are common to posters on this site, and other sites.  One thing that strikes me is that most posters are in different phases of the condition,  and although sympathy/empathy are nice things, they don't quite get into the area of finding or sharing suitable solutions for those differing experiences.  What seems to be missing is a general overview, common to all, and acceptable to all,  which would give a foundation to build suitable solutions upon.  Some might even think that there are no solutions, except poossibly medications or surgery....but, I personally, disagree with that, because I reckon that those possible but risky solutions are only relevant to certain grades of C/S.

The one thing that really stands out for me, after experiencing many different types of C/S phases, is that reasonable manageability always seems to return after difficult phases,  and I'm inclined to ask questions about that because that is not a common feature of many other chronic conditions.  It's like a rollercoaster effect, which in turn plays a bit of havoc with our expectations, and with our default settings for just getting by with the least possible disruption.  It adds to the overall problem, by introducing a mindset that can't predict tomorrow's issues.  Also, I think that just adds to an undermining of the decisions we might want to make in the present moment,  decisions which might affect how tomorrow actually does evolve.

Just going back to the issue of 'phases' which pass, I've come round to seeing that as an attempted 'corrective' dynamic,  whereby most of the symptoms we experience probably result from reactions to threats of nerve compression,  and that those same symptoms have little to do with bone degeneration except in the sense that the threat to nerves wouldn't happen if there weren't any bone degeneration.  I realise that some people with C/S have an underlying arthritic condition which increases degenerative rates, and thus increases symptom potential, but I still think it makes sense that symptoms result from threats to nerves rather than from spinal degeneration (although one causes the other, and the other causes the symptoms).  By that definition, I think it's possible that even where there is serious degeneration,  it doesn't necessarily mean the symptoms will get worse....unless there is accompanying increase of threat to nerves.  Make sense ?

So, just wondering if anyone has an opinion to offer on this,  whether agreeable or not,  and maybe we can thrash something out to help create a better picture that people can understand.

Comments welcome......

Gerry

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  • Posted

    Was diagnosed with t1-t5 about 5 months ago.was initially diagnosed with carpal tunnel syndrome .i have been eating 30 mill codeine for two months ,and now I can't go to work because of health and safety .just got my first ssp form this morning ,but like you say ,I have good days and bad days .i am scheduled for surgery in 3 months ,but it feels as if my employer doesent believe how much pain I'm in .the codeine is ok for getting rid of my constant headache for a couple of hours ,but does nothing for the numbness ,pins and needles in the arms ,lack of sleep,chest pain ,losing balance ,and what can only be described as cramp in the side of my head .
  • Posted

    Hi

    I've just been mulling over some of the social aspects of C/S ....not so much the aches and pains,  more the problems we face just dealing with people.  Describing C/S to anyone can be a bit tricky....firstly they usually don't know what Cervical Spondylosis is,  maybe never even heard of it,  and secondly they have nothing to compare the symptoms with....so it sounds a bit strange to them.  I don't think I'm saying anything out of the ordinary when I say that most C/S patients feel any description of their condition gets 'lost in translation',  and there can be a lot of frustration at feeling misunderstood.  Just wondering if anyone can come up with a good convincing description which might help to bridge that gap.  Perhaps a few sentences which define the condition and its symptoms,  leaving no room for misinterpretation.  Something like that might help reduce some of the social confusion that tends to arise.

    Also, was mulling over how we try to manage the unpredictable nature of the condition,  and how that affects our thinking/planning strategies.  Not knowing what tomorrow might bring probably affects any deluiberate planning we attempt.  For me,  i think in terms of Plan A and Plan B.  Plan A is it might be a rough day and I need to know I can deal with it without too much pressure from any source.  Plan B is if it turns out to be an ok day,  then I need to be prepared to get on with more normal stuff.  I'm not absolutely sure which of those Plans takes priority,  but I suspect it might be Plan A,  because that's the one where I need to insist that my needs come first.  Just wondering if anyone has their own ideas on all this,  or maybe a different approach to tackling 'tomorrow's unknowns' ?

    • Posted

      If people ask if I'm working ,I say I'm on the sick with a bad back ,rather than tell them about spondylosis,I find it easier so as I'm not boring them with the details .they usually reply ,oh another one ,
  • Posted

    Gerry

    I have read your comments with interest .. as newly diagnosed I find these forums very informative. I had just classed my CS as a progression of my osteoarthritis, but some of the comments on here made me think back to two incidents in my past .. both neck injuries. When I was in infant school, probably 6 or 7 years old I hurt my neck and had to wear a plastercaste collar for months. I recall it as a very frightening time because I had woken up unable to move my head, speak or swallow. My ears hurt and I couldn't open my mouth. We are going back to the early 70s so I guess diagnosis was different then, but at first the doctor said it was tonsils ... it was only an xray which reported it as a neck injury from sleeping badly ... in fact I remember the doctor being amazed as the only explanation then was that I must have twisted my neck back to look at the wall behind me - some gymnastic feat or what! ... I remember the plastercaste itching like mad ... so there we are. The other incident was bad whiplash following a car accident at 17....

    I would like to know more about that early injury, but unfortunately have no family around now ... maybe the doctors can look back in my records .. it would be interesting?

    The meds I'm on now for CS are slowly helping ... I ventured out for the first time yesterday but found I kept feeling dizzy, especially when looking up, even slightly. Its my 50th birthday today so I am determined not to have a bad day ... Sonia

    • Posted

      Hi Sonia.

      It's happy b'days all round...mine was a few days ago.  Hope yours went well.  Don't think you'd get much joy from revisiting old records...they can't re-diagnose on reflection,  and injury based C/S is such a slow developer it's probably impossible to state anything for certain.  I just use my intuition to try and spot the possible starter....and even then I don't think I had any symptoms for maybe 10 years.  However,  I've had 30 years of various C/S phases,  and that, despite all the difficulties,  gives me some familiarity with what to expect when a new symptom comes knocking.  I think it's different for anyone with late developing osteoarthritis,  because the degeneration comes a lot quicker,  and symptoms can bounce around a lot more confusingly.  Hopefully the phase you're currently in will settle down soon and become more manageable....probably best to not strain neck if at all possible until some natural flexibility returns without the dizzyness etc.  If you can determine which neck movement sets something off,  then it helps with avoiding those movements in the future....that seems to be the nuts and bolts of managing the future intensity of symptoms,  along with adjusting sleep postures,  which I find really useful for easing muggy headaches, and other symptoms too.  Have to say,  might be different for anyone with different grades of C/S.

      I think C/S, as a condition,  is peculiar,  in the sense  that it encourages a lot of head confusion,  especially when headaches or mugginess is involved.  It can be difficult to separate out the different symptoms and see them for what they really are,  and the inclination is to lump it all together and see it all as something which will only get worse with time.

       My experiences tell me something different,  and I like to try and understand the detail of the condition and explore ways of dealing with each symptom.  So far,  most of my 'solutions',  or 'symptom easers'  are geared around sleeping postures and avoiding neck discomforts,  and not listening to anyone suggesting that the neck must be further exercised in any way.  Besides all the ifs and buts associated with Physio, Meds, Surgery etc.  I still think that ergonomic self- management is a basic requirement for best future outcomes....the devil is in the detail, and it's up to us to prise it out !

      Gerry

  • Posted

    I too have cervical spondylosis!  I was diagnosed with MRI about 7 months ago and I have not yet received any help.  Reading this has been wonderful because I thought I must be imagining things.  Whilst I was told I would be seen by a neurosurgeon in just a couple of weeks to take pressure off my nerves and spinal cord I have not yet been seen. 

    I have certainly noticed like some of you that I am worst upon waking in the morning in the sense that I have alot of pins and needles and numbness(not sure what to call it but it feels dead rather than fully numb) in hands, arms, feet and legs or many at once.  Of course there is pain too.  My doctor has not been able to explain this or any of my pain or difficulties using my hands.  I am glad to have found this and found you guys because now I can explain it somewhat.  I too find that little things make me worse but often there is a delay between the activity and the pain or pins and needles or an increase in problems with fine motor control in my hands.  Does anyone else experience this strange delay?  Do you also find therefore that it is difficult to determine what is causing an increase in your problems?

    Do others here also experience terrible exhaustion?  I see others have chest pain too.  Do you also feel a tight band of pressure around your chest and difficulty breathing?  This really frightens me.

    I am glad to have found this thread and found you guys because now I can explain my strange experiences somewhat. Hopefully I will be able to add to this discussion too with some of my observations and things I have found help.

    UnhappySpine

    • Posted

      I had Mri last August that showed spondylosis and stenosis in 4 vertebrae.i was in pain for years before that and was always told that there was nothing wrong with me ,.it wasn't until my left arm went completely numb that I was sent for Mri .the chest pain is like a steel band being tightened around your chest ,I get that ,tired all the time ,headache ,dizziness .you not alone in this ,keep well 
    • Posted

      Hi UnhappySpine

      Glad to have your comments onboard,  despite the circumstances !  I agree wqith your observation about delayed symptom reactions,  sometimes that can be a day or two after lifting something too heavy,  or some awkward movement of the neck,  or even just a bad sleeping posture.  The same delayed reaction would,  in theory,  also apply to any beneficial improvement of the symptoms....if correct management were applied ! ,  so discovering a good sleeping posture, for instance,  might not show benefits for a couple of days.  Patience has to be the key in any explorations of that nature,  although I've found that I can get almost instant results sometimes with just a 'nap'.  It's all about easing the worst phases into something more manageable,  and then the 'butterfly effect'  extends to all other coping mechanisms.

      I kinow there are those who would disagree,  and insist that the symptoms maybe only get worse,  but that's not my experience.  The symptoms fluctuate,  and any control achieved over the fluctuations beats the comparable impact of continuous medications any day.  It's  kind of difficult to discuss here because many will hold dearly to the only relief formula they know....medications,  and such an adherence is a barrier to thinking beyond that option.  If we put our total reliance into the health services,  which claim,  without dispute,  that they haven't yet found the answers for the C/S condition,  then, as I see it,  we are complicit in their failures with C/S,  and we are being irresponsible in our own needs by favouring their methods over any ideas about what might be best for us.  It seems we must cross the chasm of realising that treatments are doubtful,  before we really take a good look at ways to improve.

      Re: exhaustion....I think that's typical of C/S,  and probably why it is easy to confuse C/S with Fibromyalgia.  I think the exhaustion happens because,  even when we sleep,  the neck is continually making adjustments and never gets a proper chance to rest.  Good sleeping posture can help to resolve, or ease,  that,  along with headaches and stiff neck.  Chesdt pains/aches are a common feature also,  usually due to radiated reactions to a threatened nerve in the neck.  All these fluctuating symptoms com,e with their own confusions,  but mostly they will dissipate with time and good management.  The numb/pins and needles issues will likely persist without surgery,  but I've found them to be easily managed....even when there was total loss of power in hand.  HYeadaches were always my main concern,  because of the muggy thinking,  but I also think that headaches can be eased with sleeping posture changes.

      Any ideas...,.more than welcome.

      Gerry

    • Posted

      Like you Shauno44, I was in pain for a little over 4 years before diagnosis.  The pain was terrible.  Right arm pain from shoulder into ring and pinky fingers.  It was as clear as a bell.  The chest pain is in the wall on the right side and it felt like I was being stabbed and somebody was blowing on and ignighting hot coals in there.  That along with a tight band of pressure around my chest.  I also had sciatica primarily in left leg but also often in right leg too.  My doctor told me it was nothing.  She would not investigate.  I eventually went to other doctors with much the same result.  Finally, a doctor orders an MRI but it was of my chest wall.  Luckily the people doing the MRI were onto it and they told me they would not do as my doctor ordered and would instead check my cervical and thoracic spine.  When they were finished and I seen there faces I knew something was wrong.  Isn't it frightening when you know something is wrong and when you are in too much pain to sleep but nobody listens?  Anyhow, I was listed as urgent but referral was lost and then there were other blunders.  Still waiting and deteriorating.

      Do you know what it means when the arm goes numb?  I still remember the first time it happened to me.

       

    • Posted

      Hi

      Just for information....a numb arm usually indicates some stenosis  i.e.  where the vertebrae in neck might be touching the nerve root.  It's fairly common with C/S,  but might require surgery depending on severity.  If you google stenosis,  you should get a clear picture of problem + treatments...it's well documented,  and it is one of the C/S issues where definite treatments are well defined.

    • Posted

      The affected vertebrae is pressing on the nerve that exits the spine to your arm ,sending the wrong message to your brain ,it's not nice is it .my arm was like it for two months and the doctor said it was carpal tunnel syndrome and gave me anti inflammatory tablets ,it wasn't until the Mri that he believed me .i usually get it if I lean over ,or stretch for something 
    • Posted

      Hi Gerry,yes the headache that lasts for days and nothing shifts it ,I find mine are affected by the weather,ie if it's overcast and raining ,which it usually is up here in the Welsh valleys,I know I'm going to get one ,but if it's sunny I don't get one ,
    • Posted

      Gerry,

      I find symptoms come and go constantly.  It drives me crazy because as I learn to adapt to pain it spreads or new pain arrives.  Occasionally the pain lessens too though.  Other symptoms too keep changing and that makes for a challenge when it comes to coping and making plans.  Although I don't like to hear of others suffering it helps me to know I am not alone.

      I have not found pain relief at all helpful but accupuncture and kinesiology have helped both with pain and sleep. 

      I am interested in your theories about sleep and CS as I have insomnia.  I am thinking that constantly changing symptoms are a challenge when you are trying to sleep because the mind tries to track it and decipher it.  On top of that is the pain which makes it impossible to get comfortable and something else I am unable to put my finger on.

      I just do not know how to sleep or even what type of pillow to use if I should use one at all.  I cannot imagine sleeping in an upright position as you do.

      I have a theory that if you cannot get adequete sleep that increases pain and in turn affects sleep.   This cycle continues and worsens and must be broken.  Would love to hear what works for others in order to best support the neck.

  • Posted

    I am trying to determine which of my symptoms come from the high grade stenosis of nerve roots and which are due to pressure on my spinal cord.  It is being displaced and indented on a couple of levels.  I had been thinking that the numbness(I am not sure what to call it because I can still move it and feel it) and the pins and needles may due to the spinal cord. I would be interested to see what you think.  I am more worried about paralysis than loosing the use of my hand.
    • Posted

      Mine comes and goes and was always on my left arm,but last two weeks been getting the same thing on my right .my bicep goes like bingo wings ,sort of just hanging there ,I would see your Gp straight away and tell him all this and get him to make you another appt with the surgeon, take care 
    • Posted

      I only use the sitting semi-upright sleep posture, on a sofa pushed against some bigger furniture,  when the neck is stiff and sore,  and for any headaches that last more than a couple of days.  That's quite rare these days,  maybe twice/threetimes a year,  just to shift the worst phases. Otherwise I sleep flat out on sofa with head tilted up slightly with soft pillow on arm of sofa.  If I sleep on mattress I find that symptoms can become cyclical and difficult to shift,  but it's ok on mattress at other times.

      Re the different symptoms......A compressed nerve causes numbness, pins and needles, and sometimes a burning pain along the nerve extension,  whether shoulder, arm, or hand., or leg.  Loss of power or control are also caused by compressed nerve or nerve root. These symptoms can go through differing phases,  but they tend to be long lasting,  although not necessarily all that painful....mostly annoying.  Most other symptoms, whether chest pain, frozen shoulder, stiff/sore  neck, headaches,  sore muggy head are caused by muscular reactions as the neck tries to protect the nerve/s.  These associated symptoms can be relieved gradually by allowing the neck to do its protecting with the least possible resistance. Both sets of symptoms can come in any combination depending on how the nerve/s are being aggravated....so,  understanding the possible irritants, and adjusting to safe mode,   can make a big difference to intensity and longevity.

      That's my take on the whole C/S thing,  seems to work for me with that understanding.  Always, at the back of my mind there's an anxiety,  borne of experience,  which doesn't allow me not to worry about what tomorrow might be like,  but if I rationalise the possibles, and try to manage within a safe zone,  then I worry less.  Even if the theory about the differing symptoms was wrong,  I still get the benefits of a limited posiotive outlook.

       

    • Posted

      PS....

      Stenosis and pressure on nerve roots are the same thing,  they both happen in the root canal and affect the nerve root,  which is normally protected by a viscous rubbery fluid which keeps the vertebrae separated from the nerve root.  the other type of compression occurs where the nerve exits the spine and might be impeded by osteophytes,  which are little bone spurs which grow on the vertebrae,  initially to protect the nerve channel,  but can become a problem themselves as the condition progresses.  The two symptom classes which result from these separate causes are called Myleopathy and Radiculopathy.  Might be best you google them, save me going into detail.  Your MRI result should show which applies,  or if both apply.

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