1. Community
  2. Bones, joints and muscles
  3. Cauda Equina Syndrome

CES and pregnant ?

Posted , 2 users are following.

danny99649
danny99649

my wife had the CES surgery after 5 hours of been  diagnosed. She is stable now since the operation on 11/7/15. She is doing physical therapy and she better on the bathroom 1 and 2 although with effort. She is feeling pain on her legs even though her mobility it's improving but I am concern it's about been 3 months pregnant and recovery anybody can give any pointers on how to do both, we will be seen Doctor abousley but to me another resource its people that have gone through it. Thanks 

0 likes, 3 replies

3 Replies

  • shawng
    shawng danny99649

    Posted

    I can tell you that I am in very similar shoes right now and prior. I had CES surgery within hours of being diagnosed (this was in August 2013) and came away very lucky. They did not fuse my disks so they just removed the disk so that my spinal chord could heal as much as possible. 

    It was a hard recovery but am good on bathroom 1, and #2 is just different than before. I do have some bad nerve damage on the entire back of my left leg including my butt and my three outer toes. I do have some nerve damage in the saddle area as well as the private area. I was approved to try and get pregnant from my sergeon when I was post-op 6+ months (only because that is when I asked) and gave birth to my son in November of 2014 via c-section. 

    Dr warned me that I would probably have more back pain than the normal pregnant women and that it was between my ob-gyn and me, but he would suggest a c-section because they were not sure how it would effect my back as well as how pushing to give birth would go with me having not all feeling down there. So I went in knowing that and was perfectly fine. No more back pain than the normal pregnant woman I don't think. 

    Currently I am 30 weeks pregnant with my daughter (due at the end of January and will have a c-section) and have come to the conclusion that I had some nerve damage from CES to my uterus, and I can't feel everything the baby is doing (was this way for my son and now as well for my daughter). This can be good or bad, towards the end of the pregnancy it is not good because you look for those feelings to make sure baby is ok, but at the same time I feel like it is good because the baby doesn't keep me awake at night as much. I do feel things and see my belly move and things like that, so I know all is ok, but I know that I have nerve damage in there uncourtly. 

    The hard part is more of once the baby is delivered, and it is harder on my back as my son is getting older and wants to be held (of course by me) and picking him up and down, cleaning up toys, and general just kid stuff. He is a year old now, but the alternative to this is not being able to walk and not even being able to have kids at all. I will take my situation because I know a lot of people with CES have it worse than I do, and I am so happy to have my children. 

    The worst part of all of this I think was having to get off narcotics, so the baby did not have problems. Once I have this baby, I will probably seek help on pain management to deal with my back pain and eventually have my disks fused. If you have any other questions, please let me know. It is a hard situation, but you will get through it and have a beautiful child in the end. 

    • danny99649
      danny99649 shawng

      Posted

      Hi there, thanks for your experience. My wife its feeling better she is on the wheel chair , because her nerve are not complete not wake , she uses her walker when she walks and when she gets tired she will use the wheel chair but as you mention no narcotics beause of the baby. She will be doing physical therapy twice at week. She is improving thou.  
    • shawng
      shawng danny99649

      Posted

      Good to hear that she is getting better. I find that my second pregnancy has been worse than my first. Not sure if that has to do with my first being a boy vs the girl I am due with right now. They say when your pregnant with girls it is a little worse. I wish your wife luck that things go well. It is all worth it in the end. I do have to say that I am hoping that the next two months go by fast for me! If you need any advise or have questions please feel free to let me know. 
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.