CF Not Just Respiratory!

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Cystic Fibrosis is not just about Resporatory problems. Cf also has digestive problems. I was looking for a chat group for Cystic Fibrosis, Stress & Weigjt Loss.

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3 Replies

  • Posted

    does it have the same symptoms? like difficult to swallow, tightness of chest, difficult to breathe?

    like there is phlegm obtructing the throat things like that...

    finally if the symptoms falls in the same area, what medication do we need to take?

    please help us on this if you have other information available.

    Thanks Mumpower

    • Posted

      All cf patiena are a bit different. My daughters morw in chest.nshe ises shakinf vest to shake it looae & cofh it up.

      Also digestive problems and weight gain. Mucas blocks organs too.

      They lose alot of salt too. If you liick their skin, like an arm, they taste like salt. Seeps theu their skin.

      Sometimes they have clubbed fingers Like a frogs. Something to do with the liver.

      Hope this helps.

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