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I was feeling really ill around November which was a viral infection . I’ve nevrer felt the same since.  I am not completely bed bound but after exercise my muscles are in so much pain that all I want to do is stay in bed . The muscle aches are only after exercise which leads me to thibk is it because I haven’t exercised for a while because of my viral infection or is it something else. I’ve also have a sinus infection and nausea (could be caused by PND) I have had several scans and blood tests which have come back fine apart from insufficient vitamin d , high liver enzymes and bone abnormalities what does this mean though? I am feeling really fed up and depressed feeling like this as I am only 16 and feel the rest of my life is going to carrying on feeling this way. I am starting to take vit d supplements but my reading was 30 which isn’t really that low ?😞

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5 Replies

  • Posted

    Sorry to hear about your troubles lucas. The only advice I can give you is if you have the possibility of having a muscle biopsy taken and examined for damaged mitochondria. That is a typical damage with ME or post viral syndrome.

    Hang in there.

  • Posted

    Lucas, my onset, symptoms and blood work sound exactly like yours. At your age I would hope for a full recovery. I can tell you some things I have done which have helped. PM if interested. 
  • Posted

    Lucas--In your post, you don't mention fatigue, which is a primary symptom if you have ME/CFS. The fatigue worsens with any physical activity. Also, physical activity can bring about worsening of symptoms, such as muscle aches and nausea, and many other symptoms. ME/CFS often comes about after a viral infection, which is what happened to me. If you do have ME/CFS, because you're so young and have only had symptoms since November, you have every chance of getting better. Here's the important part: don't go beyond your energy level, which can result in a crash and the worsening symptoms. This may lessen chances for a good recovery. Can you see an ME/CFS specialist to get a diagnosis, so you know what you're dealing with? Also, an infectious disease specialist or rheumatologist may be able to give a diagnosis. Go to the "solve ME/CFS Initiative" website to get more information.

    • Posted

      I do feel fatigued but only after exercise but it could be cause I was so active and since the viral infection I haven’t exercised and when I did on Monday for the first time in months I had bad pain in legs day after also been nauseous for months but it could be to do with post nasal drip
    • Posted

      If your fatigue is not all-pervasive, it's hard for me to imagine you have ME/CFS. But of course you need to get a doctor for a diagnosis.

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