CFS?

I haven't been diagnosed with cfs yet but I have many of the symptoms you have, my doctors haven't found anything yet except low vitamin d and folic. All my doctors say that low vitamin d and low folic acid is quite common and I just need to take supplements and I will be ok (they already tested for celiac and Crohn's). But other than that they offer no help at all. Some suggested that it might be cfs but no proper diagnosis yet. If you get to the bottom of this please share with us.

Have you been diagnosed with M.E, CFS, if not i would be asking for a referral to your local team. If your secondary conditions are the anxiety then make sure you make that clear to the doctors and state it is because of the issues relating to what you are suffering from and the lack of suitable medical assistance. If no luck, ask for a second opinion, unfortunately it is a long drawn out process. If you have had those blood tests it would suggest they have started going down that path as most CFS teams have a set of tests to be done before referral. There is no magical help after that unfortunately if it is CFS but it would be a start.

I must have seen every doctor in the surgery at some point. I havnt been diagnosed with anything (par anxiety)

And I'm told the same thing over and over. Anxiety itself is a vicious cycle.....I get anxious due to the symptoms, but the symptoms make me anxious. And as that's in my history I believe they find it easier to diagnose it as that. It was myself that demanded the blood tests. Just those vitamin deficiencies as I said come up. But I read somewhere that low folic and vitamin d is common with cfs??

I too was tested for intolerances and Crohns.....clear.

Thanks for response so soon.

Gaz,

It must be awful, especially those skin and hair symptoms.

The classic ME symptoms are: delayed reaction to exertion, and the resulting fatigue not substantially alleviated by rest.

Anxiety is not the right name for what you are suffering if you do have M.E. M.E. docs call that symptom agitation and is caused by uncontrolled overactive adrenals. The classic sign is that you get as much agitation from laughing and fun as from fight/fright responses: part of the cruelty of the illness. It's a real symptom and its foul.

Don't let them call it anxiety: anxiety is caused by the mind - the nerves and by certain phobias or stresses; everyone has anxiety: but with the healthy, if distracted by going to a 'safe' place and doing 'safe' things, anxiety melts away. Agitation you can get in safe places with safe people and doing hitherto enjoyable and relaxing things. Its not in the mind. Never give any doc the impression its in the mind, or that you are depressed. You are p****d off at being ill, but that's not depression. M.E. is not a mental illness.

Hi Gareth

If you haven't investigated already, look into what you are eating, I was experiencing near enough all your symptoms particularly the lymph nodes and the body anxiety and complete fatigue, brain fog etc and it all came down to food intolerances, for a short period try cutting out the main culprits one at a time like cows milk, gluten etc and see if at least stops the fight and flight responses, mine have all gone now and I had them for years not knowing.

Its worth just noticing after eating certain foods how it makes you feel just after you have eaten it, particularly in the morning. Definitely cut out/down on the caffeine, alcohol and sugar if you haven't already as that exasperates the endocrine system/adrenal glands etc, anything you body classes as a toxin will kick it off and then have the knock on affect to the rest of your system.

Thanks

Sophie

Thanks Sophie.

I will try that. I must say I am a bit of a caffeine and sugar fiend.