CFS and Cardiac Issues

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I have suffered from CFS since the age of 12 (am now 59). Two years ago I returned to part time work afyer a 15 year gap, which I am loving. However, the fatigue levels are difficult to manage. I realise that when I say to someone 'I'm tired', what I really mean is I am so exhausted that in a minute I am likely to collapse so please don't talk to me or ask anything of me. Last week was a week like that until on Friday eve I was driving my daughter home from college when I felt increadibly nauseous, has galloping heart palpitations and felt really faint. I had to draw to ther side of the road until I recovered enough to get home, and then had to sit in the car for a further twenty minutes before I could get out. I ended up in A&E with suspected heart attack and spent a night in hospital. I am sure this was just another sign of my exhaustion levels and wonder if anyone else has had similar symptoms??

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6 Replies

  • Posted

    Oh Deborah what a horrible experience for you! I hope you Re feeling more settled I have nausea and faint feeling with dizziness at times and definitely this is related to my level of fatigue

    I empathise with you when people hear you say your tired. I tell my hubby "I'm done! Wipe out!" When I can do no more.

    From outside people say "yeah I'm tired too". No answer to that, not worth trying to justify it sometimes sad

    All the best

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  • Posted

    I've been taken into hospital twice now with Atrial Fibrilation, a problem that has developed since I developed the ME.. Cardio-vascular problems are very common with ME/CFS in one form or another, with some doctors specialising in ME/CFS seeing large numbers of arrythmias and heart poroblems.

    So, you're not alone and I know how scary it can be. Another reason to try to keep everything under control and not to get exhausted, and we know how easy that is ! ... rolleyes

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  • Posted

    I assume you didn't have a heart attack when they checked you out? Yes, I've had similar symptoms from much lower levels of exertion than you. It sounds to me like you're really pushing yourself. Your body is telling you to dial it way back. Please be careful.
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  • Posted

    Thanks guys, and guyesses..... its just good to know that there are folk out there who experience similar things. Yes, there was no major heart attack but they haven't ruled out possible blockage and I have to go back for an angiogram and echo. They were very thorough. Meanwhile its back to jolly old PACING!!
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  • Posted

    HI, I've had it since about 12 years old and I'm now 37.  I'm at the severe level and constantly pushing myself in order to try and have a 'normal' life.  Over the last year I have been having heart rate problems, along with other things.  I have recorded very low pulse pressure (the difference between the two blood pressure numbers).  My heart rate is too high when sitting talking and I can't walk up a slight hill even on sticks without going light headed and dizzy.

    My Gp has requested an appointment with a Cardiac specialist twice and both times they won't see me cos they say it's just M.E.  My M.E. doctor specialist has seen the results and confirmed she often sees heart problems due to M.E. but the Cardiac specialist shouldn't just rule it out without even seeing me.

    The M.E. doctor specialist thought it could be due to a low blood volume, which is very common with this condition.  If the volume is too low than the heart rate can go up too high when the demand isn't at the level the body needs for what you are asking it to do. 

    I bought my own blood pressure monitor to record my own results, especially when feeling yuck.  The results I recorded in a book along with how I felt and what I was doing.  My G.P. does appreciate the results. Good luck and keep safe xx

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