CFS and Horners Syndrome

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I got a CFS diagnosis a couple of years ago and recently developed Horners Syndrome and just wondered if anyone else suffering with CFS/ME has Horners or if it's something completely unrelated ?

I ve had a CT scan of my brain and that's all clear.

Any information or experiences would be greatly appreciated smile

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5 Replies

  • Posted

    I don't have Horner's syndrome and I've never heard of anyone else with ME having it Kat. I expect it's unrelated, could be wrong though.
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  • Posted

    Morning Kat; no I havn't had to suffer from this condition, and I've had Fibro/CFS for nearly 20 years..............I have had to put up with most other problems, but luckily not this.  Hence, it maybe something not related, but as it has something to do with "interrupted/damaged nerve synapses" it is understandable to feel it may have a connection.  I guess if anyone else comes up with this also, then it may become a "yes"...(when I first started reading your piece, I immediately thought of Shingles on the face, but if definately diagnosed as Horners with the small/unequal pupil as well, then...)........am sorry you are having this problem, as it would be annoying, let alone the nerve pain.............hoping that your specialists can find treatment that can help.................Bron
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    • Posted

      Hi, thank you for your response smile

      Yes, I ve got the droopy eyelid (often worse later in the day or when I m really fatigued) and constricted left pupil, fine when in normal light but as usual with Horners it remains constricted in semi dark and doesn't dilate normally (have had my eyes checked out and they are fine so not an ocular cause) but the I don't have the no-sweating symptom, that is normal.

      No Shingles or no Bell's palsy, but the CFS is at its worse, limbs heavy, painful, shaky even after slight exertion. Vertigo is almost constant.

      CT scan has ruled out a tumour/stroke/swelling thank goodness, but now it's back to a neurologist to find a reason for it and when you ve got no energy and feel so fatigued, it's the last thing you need sad

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    • Posted

      I know that you're getting medical help with it but Eyebright herb and White Willow water are very good for the eyes. Might be worth looking into.
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    • Posted

      Oops I meant Witch Hazel water, White Willow helps with pain.
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