CFS and menstrual cycle

Well I had a TIA 18 months ago, am currently awaiting yet another brain scan...having been struggling with extreme exhaustion, not just tired, completely exhausted, coordination issues, struggle to even coordinate the stairs on bad days, memory loss, extreme muscle like pains in my arms and legs, pins and needles in my feet and feeling like struggling to swallow, generally most days feel like i have been hit by a truck Must admit I had never even heard to ME/CFS before. But doctor said it can be brought on by illness/trauma and my stroke was probably the original cause. Have really struggled with my periods for as long as I have had all the symptoms, had ultrasound internal etc but everything came back normal. It's so getting me down, it's not just spotting it's full on heavy period, then off for few days then starts ago. The pain is getting alot worse as time goes on and even to the point of making me sick. I am seeing my GP again next week, so will bring it up again. Thank you for yr reply.

Wow! Well, your symptoms certainly are right on for M.E.

I must admit I had really just put it down to recovering from the stroke so just tried to bare through it....just put it down to slow recovery, it was my doc who sent me to neurologist as she said it was not normal recovery, must admit I am a complete wimp going to docs and hospitals, so try avoid them, which has unfortunately been very detrimental to my health. So lesson learned. I am just hoping that it can all become my manageable:-(

Thank you for reply....yeah am glad finally diagnosed cos I thought I was actually going mad, so hopefully they will be able to help me control it all. Yeah I will mention that to doc thank you, it's a nightmare...think 'yeah period ended'....only for a few days later period pains and back on again, worked out on 28 day cycle was on 21 days....and heavy 21 days!!!

Thats a hell of a long time! My sister is terrible but she was diagnosed with endometriosis and had cancerous cysts removed she will need a hysterectomy eventually. I only bleed for a week with one day where i cannot leave the house as not matter what i wear it leaks right through. If ive been sitting and stand its like my waters have broken. I have to change every hour sometimes more. How old are you as it could be the perimenopause as that can last 10 years. Also have you had a gynocological consultation to check nothing like endometriosis is going on.

M.e is horrendous i remeber i couldnt even brush my hair x

Am 44. Yeah I totally know what u mean....and it costs a fortune!! Had a ultrasound a few months ago and assume everything was ok. Just don't think it's helping with the tiredness....and last few periods had to cope with feeling quite nauseous, on top of cramps and heavy bleeding. Guess I just want someone to way a magic wand lol

Im 43 but some days i feel like im 80.

Goodness just re read and god that must have been scary having a stroke at your age. My friends husband had a really bad one when he was 36 and his speech walking everything went. He can still barely talk much or walk unaided. That must have been super scary for you. They do say m.e can be triggered by so many things. I had a head injury abroad when i was 21 and never been the same physically since. How are you now apart from the m.e x

Yeah wasn't good, was in hospital for a while, spent quite a lot of time in denial, as I thought exactly that 'strokes only happen to old people' but was very lucky as ambulance was called very quickly and with the care and rehabilitation I got I count my lucky stars. Had a fantastic stroke nurse for a few months after I came home, she was one in a million. Lol, I feel exactly the same, like an old biddy, needing daytime naps and take so many tablets as it is that I am sure I rattle.

Hi to Kelly Deb and others;  it has been stated that many women who have been given a diagnosis of ME/CFS/Fibro, have also had a history of gynae probs.  I, too, had Endometriosis for many years, prior to being diagnosed with fibro.  I am wondering if Deb, and others, should not go and talk to their/a Gynaecologist, and ask re having at least a D&C......this could help with your heavy menstrual cycles (it cleans out the lining of the uterus)....and even consider having an Hysterectomy if past Child-bearing age?   I will also advise, though, that major surgery such as an Hyster, can take a long time to get over, if suffering from Fribo/ME/CFS......I did not actually complain of the CFS symptoms until I had my Hyster, but had already been having Fibro symptoms: so deep thoughts need to go into thinking about the Hyster, but a D&C should be ok, as this is only a minor op.  I had trialled Hormone Treatment to ease my Heavy mentsrual cycle, but this only made the bleeds continual, instead of easing them up, and re-regulating my cycle.             thought for you all.                 Bron

Hi all, I had menstrual probs in my late 30's, long before M.E./CFS. I had sterilisation op, which cured me.

Sorry to all gents having to read all about 'women's problems', (just be glad you don't have them!!)

Regards to all.

No we just have ego and prostate problems... 

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