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Hey guys, I posted the following in the forums for Chronic fatigue syndrome, but I thought some of you may be able to help me too
Hey Guys, I hope you are all well.
I have a few questions to ask, about something that has confused me greatly following my mild (but still horrible) CFS diagnosis a few months ago.
Basically, I am kind of confused as to what constitutes PEM? Lots of sources say it is even greater exhaustion etc following mental or physical exertion.
When I overdo it, I seem to get the following symptoms: lightheadedness, a horrible feeling of pressure in my head, hot face, sensitivity to noise etc. This lasts for up to 5/6 days and I really can't do anything to negate the effects. However, I don't really get any more tired than usual, infact I probably nap less when I am experiencing one of these 'flare-ups' or whatever they are. These are currently occuring in about a 1 week on, 1 week off cycle.
However, the thing that confuses me, and what I wanted to ask about - these symptoms often come on even if I haven't exceeded my limits. Often I have had a very restful few days, no work, no uni, and I have spent a good deal resting, and out of the blue - these symptoms will come on. Other times, I will have had a really hectic night at work (i work in hospitality, would not reccomend with CFS lol), and a busy time at uni and I will feel no worse in the next few days????
This has kind of led me to believe that it may not be to do with PEM.
So what I was hoping you guys could help me with, would be to depart your wisdom on the subject of PEM. how have you found it to work? do you think what I am expereiencing is PEM?
OR, do you think I might be experiencing symptoms of something like POTS? I am not sure whether these symptoms warrant a visit to a doctor, or if a doctor could help me in any way.
Any help would be greatly appreciated, at this stage in my life (a 20 year old boy who was previously very fit), i have accepted that I will be unwell for a little while, I am OK with that and have made adjustments. However, these new(ish) symptoms are really a pain in the neck, and add a whole new dimension to this whole CFS experience.
Thank you for any help you can give me, i appreciate it.
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