1. Community
  2. Brain and nerves
  3. Chronic Fatigue Syndrome

cfs..balance and disorientation...

Posted , 6 users are following.

guy72767
guy72767

Anyone have severe balance issues? Feels like a head injury...cant stand up...vertigo sensation with total muscle fatigue, dizziness...anyone experience similar symptoms and any tips? Thankyou...

0 likes, 16 replies

16 Replies

  • Elle1234
    Elle1234 guy72767

    Posted

    Greetings guy,

    You are not alone. I too suffer with dizziness all the time. I was diagnosed with post viral symptoms in September 2014. I am not as dizzy now but some days I get bouts of vertigo. Do you get it all the time. I am trying hard not to think about it. I think in time the brain does compensate and the dizzies become less or more in the background than a scare. 

    Worse I get terrible ache in the heels of my feet. And hot flushes in my legs however after four months docs cannot do anything and keep feeling it will pass. 

    Ask me any questions I try to help. 

    Elle. X. 

    • guy72767
      guy72767 Elle1234

      Posted

      Hi Elle....thanks for your post....do you have any mobility problems? I cannot walk more than three paces without feeling as if my legs are giving way....the more activity i attempt the more dizziness etc i experience, to the point where i cannot move for days at a time....pins and needles in my arms and legs, and burning pains in my limbs....life is a party, lol.....hope you are not in the same boat but are managing the condition to the extent where you are in charge not the illness....smile

       

    • Elle1234
      Elle1234 guy72767

      Posted

      Hello guy,

      Yup pins and needles in legs and arms. I explained all this to the neurologist and he looked at me perplexed. Well it's not life threatening. Since sept I have bathed in epsom salt. You can get it in major super markets and online. I am not sure if it has made a change - I suppose it's psychological more than anything else. You know like I am trying to proactively do something about it. 

      I can walk but I know my heels ache and my muscles twitch 😞. Try to eat healthy and take vitamins too. But can't really say my symptoms are abating ... Alas we have to have a giggle or we just end up sad  😀😀😀

    • guy72767
      guy72767 Elle1234

      Posted

      Hi Elle...thanks for your input...wishing you well...Guy
    • guy72767
      guy72767 Elle1234

      Posted

      Hi Elle....i hope you are having a good as news years day as is realistically possible...smile

       

  • Fidd
    Fidd guy72767

    Posted

    Maybe worth being checked out for possible autonomic problems like POTS?
    • guy72767
      guy72767 Fidd

      Posted

      Hi Fidd...thanks for your comments...my doc is visiting on Friday..i will mention your suggestions thankyou..
  • jackie00198
    jackie00198 guy72767

    Posted

    Are you familiar with Laura Hillenbrand? She is a bestselling author with ME/CFS.  She wrote "Seabiscuit" and "Unbroken" In two articles about her illness, she talks about debilitating vertigo. I highly recommend the articles. You can Google them online, using her name and New Yorker, and New York Times magazines--the two publications that carried the articles.
  • alison44235
    alison44235 guy72767

    Posted

    Oh yes. I nearly collapsed on a walk the Tusday before christmas, I did not think I would get back to the car, it was very frightening. The feeling went eventually, the only way I dealt with it was to ignore it which was very very difficult to do.

    Alison.

    P.S. I am feeling very dizzy now, I am lying on the bed writing this.

    • guy72767
      guy72767 alison44235

      Posted

      Hi Alison....hope your dizziness is easing....any other symptoms?
    • alison44235
      alison44235 guy72767

      Posted

      I felt sick and have been feeling sick for around 6 weeks now and all the other horrible symptoms of M.E. of course.
    • guy72767
      guy72767 alison44235

      Posted

      It seems we share  more than a few similar symptoms and in terms of severity...i hope to get out of the house this year...lol...
    • Elle1234
      Elle1234 guy72767

      Posted

      Hello guy and Alison

      It is quite strange that we have the dizziness because I do not hear a lot of cfs sufferers who have this problem or perhaps no one discusses it much. 

      I too am like Alison I try to ignore it or it will take over my life but sometimes it's hard and kind of knocked my confidence a bit.  because it is always in the background. The doctors did give me anti motion pills but I did not take them as I did not want to take anymore synthetic drugs. I doubt they work anyway. 

      Try to eat healthily and also boost immune. We are going to fight this. 

      Lillian. 

    • guy72767
      guy72767 Elle1234

      Posted

      Hi Elle...thankyou for your post...get back to you when i can manage....Very best wishes, Guy
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.