cfs..balance and disorientation...

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Anyone have severe balance issues? Feels like a head injury...cant stand up...vertigo sensation with total muscle fatigue, dizziness...anyone experience similar symptoms and any tips? Thankyou...

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16 Replies

  • Posted

    Greetings guy,

    You are not alone. I too suffer with dizziness all the time. I was diagnosed with post viral symptoms in September 2014. I am not as dizzy now but some days I get bouts of vertigo. Do you get it all the time. I am trying hard not to think about it. I think in time the brain does compensate and the dizzies become less or more in the background than a scare. 

    Worse I get terrible ache in the heels of my feet. And hot flushes in my legs however after four months docs cannot do anything and keep feeling it will pass. 

    Ask me any questions I try to help. 

    Elle. X. 

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    • Posted

      Hi Elle....thanks for your post....do you have any mobility problems? I cannot walk more than three paces without feeling as if my legs are giving way....the more activity i attempt the more dizziness etc i experience, to the point where i cannot move for days at a time....pins and needles in my arms and legs, and burning pains in my limbs....life is a party, lol.....hope you are not in the same boat but are managing the condition to the extent where you are in charge not the illness....smile

       

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    • Posted

      Hello guy,

      Yup pins and needles in legs and arms. I explained all this to the neurologist and he looked at me perplexed. Well it's not life threatening. Since sept I have bathed in epsom salt. You can get it in major super markets and online. I am not sure if it has made a change - I suppose it's psychological more than anything else. You know like I am trying to proactively do something about it. 

      I can walk but I know my heels ache and my muscles twitch 😞. Try to eat healthy and take vitamins too. But can't really say my symptoms are abating ... Alas we have to have a giggle or we just end up sad  😀😀😀

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    • Posted

      Hi Elle....i hope you are having a good as news years day as is realistically possible...smile

       

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  • Posted

    Maybe worth being checked out for possible autonomic problems like POTS?
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    • Posted

      Hi Fidd...thanks for your comments...my doc is visiting on Friday..i will mention your suggestions thankyou..
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  • Posted

    Are you familiar with Laura Hillenbrand? She is a bestselling author with ME/CFS.  She wrote "Seabiscuit" and "Unbroken" In two articles about her illness, she talks about debilitating vertigo. I highly recommend the articles. You can Google them online, using her name and New Yorker, and New York Times magazines--the two publications that carried the articles.
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  • Posted

    Oh yes. I nearly collapsed on a walk the Tusday before christmas, I did not think I would get back to the car, it was very frightening. The feeling went eventually, the only way I dealt with it was to ignore it which was very very difficult to do.

    Alison.

    P.S. I am feeling very dizzy now, I am lying on the bed writing this.

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    • Posted

      I felt sick and have been feeling sick for around 6 weeks now and all the other horrible symptoms of M.E. of course.
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    • Posted

      It seems we share  more than a few similar symptoms and in terms of severity...i hope to get out of the house this year...lol...
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    • Posted

      Hello guy and Alison

      It is quite strange that we have the dizziness because I do not hear a lot of cfs sufferers who have this problem or perhaps no one discusses it much. 

      I too am like Alison I try to ignore it or it will take over my life but sometimes it's hard and kind of knocked my confidence a bit.  because it is always in the background. The doctors did give me anti motion pills but I did not take them as I did not want to take anymore synthetic drugs. I doubt they work anyway. 

      Try to eat healthily and also boost immune. We are going to fight this. 

      Lillian. 

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    • Posted

      Hi Elle...thankyou for your post...get back to you when i can manage....Very best wishes, Guy
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