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Hello and thanks for reading!
I am a 30 year old male who up until last year was a healthy man with no underlying conditions, and was actually doing quite well at gym (4 days a week) and very good condition.
2016 on a while though wasn't a great year , I found out my partner was seeing someone else and caused a lot of stress trying to unravel the truth as she never admitted it but drove myself crazy for couple months!
I'm cutting out loads here but cut a long story short , I then developed a random patch of alopecia on my beard ) bald spot no bigger than a 10 pence ! I felt fine , but googled it and said it was either auto immune or stress *
I still have the spot now one year on and has not grown back.
Around august so pretty much a year ago from now , I suddenly shut down. I had pounding headaches. And i don't mean headaches you get when hungover or had no sleep , I mean pounding disabling headaches! These lasted at this severity for 2 weeks. I then stressed myself out more thinking I have a tumour I'm going to die !! It was all so random how they just started. I felt exhausted. Falling asleep by 7pm sleeping 12 hours straight. Then I had brain fog for months , dizziness , weak felt like I was riddled with a disease but I looked fine ! Still had colour , no temperature , wasn't vomiting or anything ?!?!
Again trying to keep this story short ish I'm still living with this however there has been slow improvement.
I have had MRI scans of the brain , 2 CT scans , Lumber puncture (spinal tap) and atleast 6 blood tests. Thyroid , hormones , even an ANA blood test. All fine !!
The falling asleep has at 7pm has stopped although I'm always tired. I'm not bed bound 24/7 however I don't go out much now. My muscles feel week and headaches have eased from chronic daily headaches and pounding ones to just the odd headache maybe once a week. I stay on my feet more than I did , and I can go food shopping etc however I have quit work ! I don't claim benefits as I fear that will be final straw to letting this thing beat me!
I wonder if this is just sever burnout stress rather than CFS? I feel so guilty when I see people with CFS who can't walk , or lift a bag because it causes them immense pain for days after and I think but I'm not that bad? I'm bad but not that bad if this makes any sense. I can still function day to day , just whatever that freaky episode was , it's left my body in ruins.
Neurologist diagnosed me with CFS and said people can get better with time. Some don't. Everything I've read is horror stories where people offer no hope.
I want to run , go back to work , see my mates have a beer , but I can't. I want to go to theme parks with my son but i can't. He will have to do with occasional kick about in garden. I wonder what people's opinions are on all this , the physical symptoms are very real still to this day. I used to be the type of guy who would say ah get on with it , mind over matter. But really this isn't like that atall !
You wonder if there's an underlying disease they haven't found , yet I seem to have had every test in the book !
Please help on opinions whether it's CFS, burnout , stress depression in open to all ideas however please bare in mind this hit me out of no where , thank you very much x
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