CFS from mono?

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Hey guys so I’m 14 years old, got mono about 6 months ago. I was diagnosed with in in late January.  

Throughout February, March, and April I was healing just fine, felt about 70% healthy in May. 

I thought I just had a normal case of mono, but then in late May everything came crashing down, I felt MUCH  worse/lower than had been feeling. 

At first, I tried not to panic and thought it was just a normal setback/relapse of mono. 

But over the the next 3 months so far, (June, July, August) it has just been getting lower and lower and worse. I feel worse than I EVER have so far, and I’m really worried it’s CFS as I shouldn’t be feeling this bad after so much progress before but all that progress just went to waste.

My symptoms right now mostly are the fatigue, (the biggest one right now) brain fog, joint problems, and headaches. And stress, anxiety and depression. 

Before the initial crash in late May, my only symptom was a bit of fatigue, but I only just couldn’t do strenuous stuff then but I felt about 70% healthy back then. 

Now I’m so worried it’s not mono anymore, it just feels like it’s not mono. In the first 3 months of having mono it felt mono-like or virus like, but now it feels different and much worse. It feels impossible to get back on track to how I was in April or beginning of May. 

Wondering if any of you guys got CFS from mono, and I wonder how it happened for you guys and how it developed. 

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  • Posted

    Here’s a list of us doctors specialising in cfs: 

    Dr. Lucinda Bateman and staff – Bateman Horne Center -  UT

    Dr. John Chia – Torrance, CA

    -->Theresa Dowel, NP (Nurse Practitioner) – Four Peaks Clinic – Flagstaff, AZ (she studied under Drs. Montoya and Chia)

    Dr. Kaufman & Dr. Chheda – Center for Complex Diseases – Mountain View, CA

    Dr. Nancy Klimas & other doctors – Institute for Neuro Immune Medicine – two locations in FL

    Dr. Susan Levine – NYC

    Dr. Jose Montoya & his staff at Stanford in Palo Alto, CA

    Dr. Ben Natelson - NYC

    Dr. Daniel Peterson – NV

    Dr. Peter Rowe – Johns Hopkins, MD (pediatric – hasn’t been able to accept new patients for many years but you can sometimes get in as part of a study, and he is happy to talk to your doctor by phone or e-mail even if you are not a patient)

    Dr. Kogelink and staff at Open Medicine Institute in northern CA

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