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CFS/ME brainscan

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david59662
david59662

Hi,

So 6 months into being diagnosed with post viral fatigue. What I want to know is it possible to detect issues with the brain in people with ME should they get a brain scan ? Thanks

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  • JerseyKaz
    JerseyKaz david59662

    Posted

    HI David, as far as I'm aware they cant diagnose ME with a brain scan, but as its a diagnosis of elimination, they generally can do scans to help rule out other things that ME symptoms could be mimmicing, like MS etc. Brain scans are not always that acurate, as I had one that showed a lesion, so they thought possible MS and gave me a lumbar puncture, then I had another scan done and the 'lesion' had disappeared and I was told it was probably just an anomalie! cheesygrinJK
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    • david59662
      david59662 JerseyKaz

      Posted

      Hey, thanks. I have to see the haemotologist this Thursday. Awaiting lyme disease results too. I also wanted to ask with ME does anyone else get random episodes, often for me approaching midday of all over body shaking ? Lasting for about 10 minutes then it stops ? I have been noticing also lately the neurological aspect of this illness, hence the question. I've had alot more energy the past week so pleased about that but really now noticing the brain side of things. It's funny i was arguing with my sister and she said 'you're not right in the head' LOL she's right. :-D
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  • jacquie14742
    jacquie14742 david59662

    Posted

    Hi David

    I had an MRI done due to twitching and neuro symptoms, i think to rule out MS. They found no lesions but did find a pineal cyst...not much is known about these, but i was offered no follow up treatment fo this. I think its good though as Jersey Kay said to rule out other possibilities....do you get twitching? 

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    • david59662
      david59662 jacquie14742

      Posted

      Hi Jacquie, no twitching, but i am taking one day at a time. I have the haemotologist to see Thursday, i'[m just thinking will they find anything ?

      If they don't then what ? Surely if i mention neurological symptoms i should get an MRI ? I've had tons more energy the past few days, been taking the D-Ribose 5g 3 times/day with 200mg of high quality coq10(ubiquinonoe). Started juicing organic only veggies too. I realise i can't expect an overnight cure but maybe just maybe one month or two or three. When you get no treatment form the GP what do you do ? I say completely saturate the body with as much nutrition as possible. Get fresh air, relax, good company. Omega oils are so important too, hemp and coconut and those from fish. So been feeling better so watch this space. Lots going on with me at the moment in terms of tests etc

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  • jacquie14742
    jacquie14742 david59662

    Posted

    don't get shaking epsidoes but do get twitching and buzzing of the nerves....horrid! What do you think you have done to get more energy? I feel like my energy has dwindled this week...bleeeurrgh
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  • JerseyKaz
    JerseyKaz david59662

    Posted

    HI again,

    It sounds like the shaking thing (especially if its around the same time each day) would be more likely to be a blood sugar or thyroid issue? I had the lyme test too, and the myasthenia for good measure! cheesygrinJK

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    • david59662
      david59662 JerseyKaz

      Posted

      Hey well get the lyme results this week, and myasthenia. I'm getting the sense my issues are more neurological, but strangely feel i am recovering in some other ways. Being naturopathically trained when the body is injured ie-as in a viral attack and god knows what nasty virsues are out there we don't even know about... it would then take some time to rebalance the system, which would have to be done with high quality nutrition/herbs and supplements, with rest, fresh air, exercise. One day at a time for me i never know what is going to happen.
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  • jackie00198
    jackie00198 david59662

    Posted

    There are currently no known markers for ME/CFS. In other words, neither a brain scan nor any other kind of test can tell you that you have the illness. Tests can be important in case you have another illness. ME/CFS is diagnosed when all other tests come back negative and you have unremitting symptoms for at least 6 months--at least, here in the U.S.
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