Cfs/me/candida

Posted , 4 users are following.

I've been sick from the beggining of february, at first i just thought i was a normal flu, i thought it would pass in a few days, but weeks started passing and i still was feeling awful (fever, sore bones and muscles, disiness, extreme fatigue, brain fogue, and other simptoms).

I started seeing severl doctors and i did dozens of exams (x-rays, pee tests, blood tests and others) but they all came out negative, seemed like everything was fine, all the doctors i was seeing just told me i was depressed, or it was just anxiety, they said there was nothing of 'organic' wrong with me.

And my family and friends just didn't understand, the listned to the doctors, but i knew how i felt, i knew i was really sick, and just because i 'looked fine' didn't absolutely meen i was/am.

After severl months of research that i did by my one i discovered the existence of cfs/me and from the first time i read about it i was sure that it was that that i had, but obviusly my parents and my friends did not belive me, and it was really frustrating untill the end of july when i got an appointment with a neurologist, and FINALY got diagnosed with 'post viral chronic fatigue sindrome', i got prescribed varius medicines from this neurologist but they only got me worse and i only got the side effects, no benefits.

I was kinda disappointed even if i know that there is non 'ufficial' cure or anything like that but i still got my hopes up.

Any way after that i saw another few doctors, but no one could help me; untill i managed to get in contact with a clinic in Germany, they made me do other exames and tests and i got diagnosed with 'candida' (in the gut), and they prescribed me a few medicines that i am still on know, and i also am on a very strickt diet for the candida, and this situation is really hard also because i am only 14 years old and i have to go to school and study but there are days where my brain and my body just completly shut down and i can just lie in bed, sometime in extreem pain.

Today i'm feeling a bit better than usual, so i managed to write all of this, normaly it would be praticaly impossibile.

Not sure what i want to get out of this, maybe just want to know about other people experiences with me/cfs, know if there are any similarities, or if any one has any advice for living and dealing with this ilness it would help me a lot.

Sorry for my english i'm not sure that i've wrote everything right because i am italian so i don't know english very well, but i tried my best.

Hope i didn't bore you too much.

0 likes, 3 replies

3 Replies

  • Posted

    hi Emmaa.  no you didn't bore us at all. ME/CFS is a seriously debilitating condition.  maybe with a bit of luck,  you just have candida as it can be treated. however, very often candida accompanies ME/CFS.  i do hope the treatment you are on is helpful & clears your system.

    wishing u all the best with your study/school and hope your condition improves.

    Caitlin

     

    • Posted

      Hi Caitlin

      I hope so too, seeing that candida and cfs have a lot of simptoms in common, but i started to feel sick and full after eating only towards june/july and my other simptoms started in february. So i'm still not sure about anything really, i'll just have to wait and see.

      Any way thanks, i hope too.

  • Posted

    Hello Emma,  really sorry to hear about how unwell you've been.  I'm really glad that the people around you are taking your situation seriously.  You know yourself how much of a problem it is and you can trust that, right?. I'm still learning how important it is to beilieve in myself and really listen to my body telling me what it can and cannot do at any given time.  My advice to you, especially as you have not had this condition for long, is to listen really well to your body and give it the time, rest and relaxation it needs to heal.  I know it's difficult especially on bad days but you should try to stay optimistic.  When I first got ill no one believed I was and I just soldiered on until I coud soldier on no longer and that did me no good at all.  So even though you didn't ask for this horrible thing to happen to you and it's tough not understanding it all or even having a proper treatment to make it go away, hopefully it will pass for you.  Rest, relax, chill out.  And try to value the ways in which you will grow as a person in so many ways while your body just let's the world go its own way for a while.  Good luck.  I wish you all the best.  Your English is amazing by the way!

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