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Since June 2014 I've been feeling constantly tired (i.e. the kind of tired you get whilst you have a cold, not the kind of tired you get at the end of a long day that wears off in the morning). I decided not to go to the Drs until August, as I wanted to see if the symptoms would go away. When I went to the doctors, he sent me for blood tests for EVERYTHING (apparently). I went back for the results and he said I could have waited for them, but I wanted answers so I went as soon as I knew they'd be back. They were normal. He read in my file that I suffer from anxiety (due to a combination of, at the time, lack of a job and some childhood issues) and he referred me to councilling, which I was already undergoing at the time. Councilling has helped with my anxiety, but it in no way relates to how I feel physically.
So I decided to do some research- and I stumbled across M.E. It was like someone had written exactly how I felt on a webpage and it was creepy yet somewhat soothing, in a way. I decided to go to another Dr, who gave me iron supplements (idk why) and then told to go back if nothing changed and he'd refer me to a neurologist. After 2 months of taking the iron tablets, all that'd changed was that everything tasted like metal. When I went back, his response was that it was lifestyle related (I mentioned that I hadn't slept very well on the iron tablets, as for some reason they made me stay up until 3-4am) and that I need to sort out a sleep schedule.
I'm at the end of my tether. This is my body, I know something is wrong, but my Dr refuses to see it!
(ME symptoms I've experienced include: persistent exhaustion, recurrent sore throat, aching muscles/joints, poor ciculation, unrefreshing sleep, brain fog and increased sweating. I took the whole list with me to my first Drs appointment)
Any suggestions are greatley appreciated.
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Whether your Dr understands or not there really isn't an awful lot they can do for you if you have ME. Check out the Action for ME website or more info.
If you get a diagnosis or feel it is ME, my advice would be to look at your diet and lifestyle and adjust accordingly to give your body the best chance of recovery. Cutting out caffine, alchohol and sugar has helped me. For me rest has been the most important thing and anxiety and worry is a real killer. You need to get those under control if possible. I find Mindfulness meditation helps.
Decades ago I went to my GP with chronic fatigue. At first it was a 'space age virus' = 'I haven't a clue'. I was referred to a lung clinic and found to have Sarcoidois. It wasn't the cause of the fatigue and the treatment with steroids was a ten year disaster. Once I left the doctors alone and turned to self help I gradually recovered. I changed my environment. I carefully tested every item of food and drink for tolerance. I carefully avoided exertion. Very slowly I made progress.
Self help, a committed partner is hugely helpful. is probably by far the best. Use the medics to rule out any diagnosable problems. That is the least the NHS should do. Try to avoid ineffective and over treatment. I took ten years to learn that lesson. Ten years of misery and lost life.
(I have posted a fuller account twice in the other discussions on this group).
I can totally sympathise with you as your first paragraph could have been me talking! I have suffered with anxiety since I was 12 years old, and sadly this was always used as a 'fallback' by my doctor. My symptoms of CFS started about 5 years ago. Only on Friday did I recieve an official title to my condition.
I changed doctors last year, mine wasn't getting me anywhere, he literally just kept testing for anaemia and low blood sugar then sending me away again. I am very lucky that my new doctor is incredible. From the moment I walked i nthe door she has been nothihng but supportive and motivated to help me. I have spent a year havng various tests (every blood test available, MRI, CT, EEG, ECG, X-rays, Neuro exam, cardiac work ups) just to rule everything out. Now that I am sighned off from the hospital she has diagnosed me with Chronic Fatigue Syndrome.
I have been referred to the ME clinic, am receiving B12 injections to see if they can help and am seeing my doctor once a month for follow ups.
I would seriously advise changing your doctro, and when you do ask to change as to speak to the practice manager. Then ask them which doctor would be best for you as you strongly fee you have ME/CFS. They should hopefully refer you to the one with the best knowledge of the conditions.
All I can say from my experience is keep persisting, and keep changing doctors until you get one who listens. Good luck
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