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Hello, I was hoping for some advice.
A little history;
At 14 I had glandular fever which lasted about three months. During this time my father passed, I had a stomach infection and lost a lot of weight.
Since then I have had severe joint aches and pains, extreme fatigue and have felt generally unwell. I've always been a sickly person (since the glandular fever) and get tonsillitis about four times a year. Last year I had pneumonia in the winter, and I came down again with tonsillitis in February of this year.
Since February, I have continued to have tonsillitis. It has not gone, it fluctuates in severity but I am consistently exhausted and the glands in my neck are sore. My entire body aches and I don't feel as "switched on" as I was. The severity of this increased as I completed my University degree whilst working throughout, so I was under a lot of stress. I have since graduated and am now working full time, but the exhaustion and throat issues have led to me not being able to work. I have had fainting episodes, I tend to have dizzy spells and have to sit down before I faint. I have fainted on a few occasions. I also have several sleep disorders - sleep paralysis, restless leg, lucid dreaming and night terrors.
The past few weeks have been hell - I have felt as if I have the flu, just without the cold symptoms. My body feels as though it is under attack, my head feels full of cotton wool, my entire body aches. I can barely lift my head. I cannot do much in the day - I have to pick my battles wisely as to what I do, otherwise I will suffer more the next day.
I have been back and forwards to the doctors, he has referred me to the ENT about my tonsils (although I have been told I will be waiting until November at earliest). I'm not convinced it is tonsillitis, I feel as though I have had ME/CFS since glandular fever and I am having a bad relapse of it or it is becoming more severe. I have been forced to take more time off work, and will be going to the doctors tomorrow. I just don't know what to say to them, I don't know what I can actually do to get past this and get some form of resolution. I feel as if I have little support - no one seems to "get it" when I try to explain how I'm feeling, and my employer is unsympathetic.
Does this sound like CFS/ME? Does anyone have any similar experiences? Any advice on what to ask the doctor? Any support would be greatly appreciated!
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