CFS symptoms

Hey Jacquie, thanks. Had a shocking day yesterday, feeling signficantly better today. Acupuncture made me feel better but i am a million miles away from where i was. i'm not even bothered about getting back to that level fo health and fitness, if i could have a job/normal life i'll take it, right now that would be impossible. i'm only 2 weeks into acupuncture and herbs, i plan on doing one month with 2 session/week plus herbal remedy, then evaluate.

see if you have peripheral neuropathy as this can give you numbness, shooting pains, jerking.etc.

Oh wow. I do get ectopic beats but have always had those. I keep getting test after test ran and i am ok. LOL. Yeah my resting rate in peak training was 37BPM now i notice because of lack of training it is 46BPM in the morning. The hospital said my heart was slow, i said no this is fast for me. I had to tell them i had been an endurance athlete for many years and they were like ah, ok. Have you tried TCM ?

I'm thinking about doing a chronic fatigue screen, have you seen this ? I need to compare that to Dr.Myhills mitochondrial function profile.

I've had CFS/ME for some years. I also had low blood pressure and racing heart.  The racing heart is referred to as POTS (postural orthopedia tachycardia syndrome). So here's what I did to relieve both symptoms: Lopressor (a beta blocker) for the racing heart; Verapamil (a calcium channel blocker) for the low blood pressure. In normal people, Verapamil, and maybe Lopressor, would lower blood pressure. In people with CFS/ME, the meds can have a paradoxical effect, as they did with me. Many doctors don't know this, and don't understand this effect.

A beta blocker can help with racing heart. My doctor prescribed one for me, lopressor, and my racing heart symptoms disappeared.

Lyme...WELL... my local GP's i have to say have been OUTSTANDING on this. They know i am very unwel because i have'nt been to the GP in years and it's bugging them as much as me as to the cause. I am awaiting auto immuniology results from haemotology but other bloods were nornal.

So lyme,i have had the ELISA test ran and was negative but in contact with the Lym Disease Association who are overseen by the Department of Health so they have to present accurate info to the public, LDA tell me and show me documents to show the GP, pubmed studies clearly showing ELISA tests very unrelaible, ie-people like me testing negative on all eight ELISA's then doing the Western Blot, they are positive for lyme. SO my GP telephoned around yesterday, but the lab is saying because i tested negative on the ELISA i probably will not get Western Blot on the NHS. The GP has said to leave it with her for now. Appointment Friday.I told her i already have a private test kit i was sent at home, she says if she cannot get the test for me she will be more than happy to help me do this, but had the OUCH moment on her face when i told her £150 for it, which i don't think is too bad.

My reality is often people say 'oh you were studying naturopathy, you should be well by now' which yes you would think, BUT, what i am finding out is when genuinley seriosuyl unwell the mind is a BIG problem. I've found my health improves when each disease is categorically ruled out, this brings me progress and closer to healing. So ALOT of nutrional stuff i can do is on hold, i know from the moment i start it will alsolikely take at least 3 months to work. But i need to rule out lyme, then after than MS, then after that there is nothing else and i can make peace with the diagnosis and deal with it with everything i have, my focus will not be distracted by other ? you know ?

Thanks. Definetely feel i have some neurological stuff going on. Waiting 12 weeks for a neurologist on the NHS, not good. How much did you pay to see someone private ?

I belong to Benenden so they paid but it was about £200 and worth every penny as he did the test and diagnosis there and then

Excellent, thanks, will look into that. All this waiting drives me nuts !