1. Community
  2. Brain and nerves
  3. Chronic Fatigue Syndrome

CFS, underactive thyroid and depression. Feel like I rattle as I walk with meds!

Posted , 7 users are following.

claire_73125
claire_73125

Hiya. Any general advice or just others that understand would be good. Dr has been monitoring me for last couple of years at least. I take thyroxine for thyroid, blood pressure tablets, anti depressants, and take vit d, folic acid, omega supplements, all meant to make me feel better yet still I don't feel 'normal'. I used to be sporty and active and did lots with my family. Now I struggle with house work and going to work. Being referred to ME specialist after my last course of vit d and folic is finished again. Any one else feel this way or have suggestions?????

0 likes, 7 replies

7 Replies

  • end
    end claire_73125

    Posted

    Hi Claire,

    I know how frustrated you feel. I am diagnosed with CFS/ME, Fibromyalgia, spine problems, pituitary adenoma and atrophied thyroid. Spent four years tramsing to Consultants who have been useless and disinterested. Just say your a complicated case and cling onto the cfs diagnosis.

    My endo is the worst as I swear alot is related to my thyrod problem and lypm glands.

    Like you I used to be very active but thats impossible now, can't work either.

    Sorry I can't offer you solution but undertand how you feel xx

    • claire_73125
      claire_73125 end

      Posted

      Makes you feel a little crazy at times!!! Some days are better and I think is it just in my head? Then I have a day like today and think nope. My biggest fear is losing my job. Do you still work?
    • claire_73125
      claire_73125 end

      Posted

      Sorry, read the not working now comment but my memories so rubbish I still commented wrongly!!!
    • alison46410
      alison46410 claire_73125

      Posted

      Yes, at times when I feel ok I get that am I just imagining it or being over sensitive to these symptoms feeling, but then just hours later I feel worse and things are a struggle again. I also worry about work and losing my job and messing up my chance of being given a new job because of having so much time off sick
  • tina58520
    tina58520 claire_73125

    Posted

    Hi Claire,  I am so sorry that you are feeling the way you are at the moment.  I was diagnosed with an underactive thyroid when I gave birth to my daughter who is now 19.  I was diagnosed with CFS/ME (mild) in my mid forties, but had a serious relapse in 2013.  I am no longer able to work which I had done previously, and struggle with the condition as well as lipedema which is swelling in legs, so find it extremely difficult and painful somedays to get about.  However, there are days like today, where I have been in much less pain, the sun was shining and I managed to get out for a few hours, taking it very easy walking with a crutch.

    I think the main thing is to remember that there will be brighter days, we may not be sure when or where they will be, but they will come along.  If you get a diagnosis then go the "Action for M.E "site and read up on welfare benefit you are entitled to.  Also, it will clearly explain what your employers are responsible for to help you maintain employment.  If you are diagnosed you are covered by the Equality Act 2010. 

    If you have to give up work, then you will be able to cope, once you get your head around things.  If you can see the present situation you are in, and not dwell on the past, and worry about the future, you will give your body time to re-adjust and hopefully repair in someway.

    Lastly, you are definitely not alone as you will see from this forum.  I have made contact with someone who is totally bedridden but does not give up hope of getting back out there walking his dogs.

    I wish you good luck with your appointment with the ME specialist and hope that your life improves greatly for you.

    Tx

  • jinny23
    jinny23 claire_73125

    Posted

    hi Claire,

    I have been aware of my ME for about 2 years but only just met up with specialist and now on a 6 month support programme.

    After all the advice and research I have done, I can honestly say, ME is still an enigma for me.

    i regard it as a block of wood that I just keep chipping away at .... I have realised Over time that unless I am patient, determined and positive, it will beat me.

    at the moment, I am in a very good place, am in control of the ME and work hard to plan out my days every day (unless I am too tired) then I just give myself a holiday...

    if you are fortunate like me to join a support programme, you will quickly learn to spot the patterns and plan accordingly.

    I think Red, Yellow, Red, Yellow, Green in my dreams !!!

    I am not saying I am well, I am just saying it's about you and your mindset.

    yes, I have days when I crumble but I am beginning to recognise those days and hope soon to fit those days into my life not the other way around...I am in control. smile

    It is not imperative that I work but one of my long term goals is to get back to work as I am only 57 and I love my job.

    Remember, wherever you are on the spectrum of ME, you can take control. Start small and get routine in your life that suits you.

    I regard myself as an educated person but it took someone else to tell me I had forgotten to eat lunch at lunchtime...I just starting missing it out altogether and yet I have spent years having a lunchtime in work. regular food routines became an issue I had to deal with to balance sugar levels in my body.

    love to hear other people's experiences of ME.

    Hope I have helped you in some small way .

    best wishes

    Jinny

  • claire_73125
    claire_73125

    Posted

    Having a real raaaahhhh feeling with my family at the moment!!! They laugh and joke about me being tired, must be past mums bedtime, think it's funny that my memories rubbish so if I tell them off I forget the consequence I gave them. And my husband was saying at least his muscles hurt because he can be bothered to go to the gym, when I was saying my arm hurt and I had no strength in it.

    Most of the time I laugh along too, but today my body hurts so much just because I went to a leisure pool with my family yesterday and I think it's damn unfair that I can't do normal family things without suffering for it. I know it's hard for them to understand when I don't even understand it myself, but I think it was just a laugh too far today. Sorry, rant over

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.