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Chances of crohns being misdiagnosed as colitis?

Posted , 6 users are following.

brooke22
brooke22

What are the chances of being diagnosed with colitis and it actually being crohns?

0 likes, 7 replies

7 Replies

  • rob96807
    rob96807 brooke22

    Posted

    I don't know what the numbers are, but I do know it is very possible. That being said, the treatments are pretty much the same so it does not matter much unless you are looking to do something drastic.
  • sheila91262
    sheila91262 brooke22

    Posted

    Hi, my son was indeterminate for some time but had tests at John Radcliffe Hospital Oxford and they found he was definitely UC so was able to have j pouch surgery as he had had an ileostomy about 12 months before. Only some hospitals have the expertise to fully diagnose the disease, example JR Oxford or St marks hosp London. good luck.

     

  • sheila91262
    sheila91262 brooke22

    Posted

    Hi, it is actually rather important that the diagnosis is accurate as the meds can be quite different as well as diet. Go to St Marks London for the specialist treatment if possible. It is the IBD NHS hospital  that is the gold standard and has been for years. Your GP can refer you.

    Good luck.

     

  • barbara80658
    barbara80658 brooke22

    Posted

    Well they tell me I have 20 per cent crohns and 80 per cent uc.so you can have both .
    • rob96807
      rob96807 barbara80658

      Posted

      Yeah, you can definitely have both, but I am yet to meet someone that has both.  They had a hard time diagnosing me for about 5 years.
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