Change of steroid cream I'm worried.
Posted , 6 users are following.
My gynocology suggested I saw a dermotologist who took a look
At my LS and has given me Eumovate instead of dermovate.
Have been using Dermovate for 9 months and it's just starting
to keep the LS reasonably steady so I'm worried if I change to a
Moderate steroid it won't work and I will have a flare up !! Any
One uses a lesser steroid?
0 likes, 38 replies
Lodge kay70189
Posted
I was prescribed a moderate steroid right from the start and it did clear things up. I still use it as and when needed. Perhaps if they consider your symptoms aren't too bad it is preferable to prescribe a milder strength?
kay70189 Lodge
Posted
Didn't know what to do. Will use the new ointment next time
I'm due for an application and see how I go.
Cheers.
kay70189 Lodge
Posted
someone else uses a milder steroid ointment. It's a sortie
when you have to alter medicine.
How long have you had LS?
Cheers.
Lodge kay70189
Posted
I was told in 2011, but probably had it for quite a while before that.
If the milder steriod works for you, then it is probably better to use that. Good luck.
joanne55511 kay70189
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kay70189 joanne55511
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thank you for replying that sounds so positive. I was concerned
It would undo all the hard work.
Do you follow a sugar, wheat and dairy free diet. I do and I think
I have had this for years but i'm now 55 and like many others
The menopause has brought this on.
Thanks again.
Kay
joanne55511 kay70189
Posted
kay70189 joanne55511
Posted
Thank you for replying. I have changed to the moderate steroid cream.
Did that last Thursday. It seems ok. I can't were underwear at the moment.
I'm applying the Estrol cream. And hoping that the LS won't flare.
I will keep you up to date as feel it will really help me. Have like many
Others can't believe such a disease exists.
Thanks again
Kay x
kay70189 joanne55511
Posted
Mine has lessened. From what I am reading this seems to happen independently of what you do to try to stop it happening.
Cheers thanks again Kay x
joanne55511 kay70189
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joanne55511
Posted
kay70189 joanne55511
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The dermotologist has just prescribed Epiderm find it really good. The regime you are following sounds just like mine and touch wood will continue to keep calm. I have had sencertivity under my bust recently which is new but have had this before on my bottom it went away.
My mum had this problem but I didn't find out till I spoke to my sister who lived with mum and dad until my sister got married at 40 my mum started with it in her fifties.
I don't itch just sore which was bad before the Dermovate. I have had a stressful life think that has played its part not handling it well tend to beat my self up about stuff just like my mum did.
Thanks again it good to find help only people with this problem can understand.
Keep posting stuff
Kay x ps I live in the uk.
.
joanne55511 kay70189
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kay70189 joanne55511
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Think the sencertivity is to do with diet. Yesterday I had things I don't usually have and my body took on extra water so everything was tight being careful today the feeling has almost gone.
I get painfully skin to all linked to diet.I have food intolerance.sound like a right crock. I I have found keeping thing calm does help do read a lot about Buddhism.
All calm down there have decided to introduce the weaker steroids cream slowly and if things keep calm get ride of it and only use in times of flare up.
Cheers last x
kay70189
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joanne55511 kay70189
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kay70189 joanne55511
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Kay xx
joanne55511 kay70189
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kay70189 joanne55511
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Yes sent about 4 messages to Shaylee and they have been deleted.
I have no idea why. The first one mentioned a trade name but the rest were fine. Feel a bit concerned. Can you ring and speak to the team and find out why?
Kay xx
kay70189
Posted
Kay
joanne55511 kay70189
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Maybe try and go back to when you registered and see if you can find any numbers for customer service. Good luck - jo xx
kay70189 joanne55511
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Just started a discussion box about deleting me!!!
Kay xx
Emis_Moderator kay70189
Posted
There is an FAQ/Help section linked at the bottom of every page in the forums to
https://patient.uservoice.com/knowledgebase/topics/59133-discussion-forums
This includes info on how to contact me and reasons for posts going for moderation and/or getting deleted. I have sent you a Private Message about your posts.
Regards,
Alan
ChrissyC joanne55511
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joanne55511 ChrissyC
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Jo
ChrissyC joanne55511
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kay70189 joanne55511
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Just like to say have introduced the milder steroid and it seems to be ok.
I'm washing am and pm with epidermal and rinse with water after every toilet break. Still going commandos and watching diet.
Had a bit off stress but managed to keep a lid on my emotions. Hope you are keeping well?
Kay. X
joanne55511 ChrissyC
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joanne55511 kay70189
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ChrissyC joanne55511
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Lodge ChrissyC
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My problem is the same as yours with severe atrophy - nothing left down there really and I do still get quite sore just inside.
It is all very depresssing. We have a new female GP and I am going to try and see her about it and ask for another referral to a gynae.
kay70189 joanne55511
Posted
Well had too mix things up with the steroid cream as using the mild one caused my labia to lesson . So I have gone back to the stronger steroid ointment for a while.
I don't have itch but was very red and sore but now the soreness has lessened. I was wondering after reading other posts what happens if you lose your cliterous and labia can you still have intercourse.
It's so depressing.
As for my diet trying 85%dark chocolate seems to be ok. It's stress that's the worst and red wine for me.
Keep talking helps a lot
Kay xx
kay70189 ChrissyC
Posted
I was wondering since looking at my lady parts disappearing. What is it like? how do you cope when things disappear? I went through the menopause at 52 now 55 and the LS has been very active for 9 months.
use estriol cream, emuaid, bicarbonate wash diet restrictions together with strong steroid ointment but shrinkage keeps on coming.
Daunting condition.
Any help much appreciated.
Kay
joanne55511 kay70189
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Jo x
ChrissyC kay70189
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I really wish I could tell you ANYTHING that would help but I don't think I can. I'll try and explain...
I have NEVER had any discomfort from my LS! Not itching, soreness, swelling, nothing. And I'm very very grateful believe me. I simply noticed some whiteness which worried me, must be around 7 years ago now. And around the menopause yes. I'm now 57 and still majorly hot flushing. So I had it investigated and diagnosed as I've previously described. I was given Dermovate to 'relieve my symtoms' but as I didn't have any that gave me something of a dilemma. But the shrinkage of my labia minora became noticeable quite quickly. When I finally saw a vulva specialist I felt I could trust she said I must use the Dermovate for maintenance despite being asymptomatic. The shrinkage coninued apace. At first I berated myself that if I'd used it from the beginning I would have saved my bits but I don't now think that is the case. Regular use did not halt the disappearance at all and now there is nothing and I still have NO symptoms. So I've never felt the need to try any of the various unctions or procedures for my relief although I do use Aqueous cream just to keep things comfortable for movement as I simply don't fit together in the same way any more.
But other people talk about their bits disappearing through fusion which is NOT what happened to me at all so I'm not sure which you think might be happening to you Kay. I'm fascinated to hear of the people who are having success with the bicarb bathing where it is helping to unfuse their fusing and is returning something of their labia to them. But I don't believe it is of any help to me. I call my disappearances 'atrophy' rightly or wrongly I don't really know but I wish to be clear that my loss is not through fusing and to me the word atrophy means withering to the point of disappearance.
You see, my clitoris is getting smaller too. Many people say this and usually its because it is becoming buried under fusion of the hood or somesuch. Again this is not true for me but it is actually decreasing in size. I still currently have sensation. Not a clue as to what the future will bring because NO one else seems to be quite like me which is a tad lonely actually.
So that's what it is like for me. As to coping, well I didn't very well. I was in quite a state at the thought of losing everything. I came on here searching for others as we all do, couldn't find anyone who could quite relate but lots of nice people all the same. And now it has all gone I've simply had to accept it though it's been a while coming and maybe I'm not quite there even yet. But I AM inordinately grateful not to be suffering the itch, soreness etc experienced by lots if not most of the other ladies here so I do count my blessings.
Wish I could offer helpful suggestions Kay but that's just not in my experience. Love to keep in touch though and wish you every success in finding something that helps. X
kay70189 joanne55511
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Nice to here from you. Been re reading our discussions. It's so difficult to really know how to treat it.
I went back to the clob for 3 applications 2 days appart.
Then tonight have used the mild steroid. Looking at my lady parts think they needed a rest from clob. As for diet not sure it has any influence on the LS. Just know I need to eat well for my IBS. But one thing I'm certain of stress has a big impacts. It's comforting to be able to swop experience
I can still have sex. And as long as I use the clob it keeps symptons at bay. I don't have the itch but have disappearance of labia.
Will keep talking .
Thanks again really helps.
Kay xx
kay70189 ChrissyC
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Thankyou for replying. My LS had no symptons just a grey colour on my labia. Then after intercourse my skin split. I was given clob and then it became sore and now 9 months later I have shrinkage of the labia not sore sometimes the skin wrinkles but clob and bicarbonate seem to stop this.
It's so sad as you say it's lonely you can only talk to people who have it as they understand. The distress it causes is unbelievable. I have finally calmed down. Although I have no confidence that it won't flare up its like a ticking bomb. I try hard now to get on with life and just hope I will be able to cope.
Thankyou again.
Kay xx
ChrissyC kay70189
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Chrissy X