Changing the dosage, headaches, dizziness, and blurred vision

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Hello! In August of 2014 my doctor retested my thyroid and decided to take me from 125 down to 50 on my levothyroxine medication. For the first few months I somehow got my bottles mixed up and was taking some of the 50 on some days and then the 125s on other days. Once I finally got that figured out I stayed on the 50 for the two months like they told me to do the recheck. I noticed that I started getting a lot of headaches which I normally do not get. I also was starting to get dizzy on a regular basis which wasn't like me either. I finally made it to the two months we rechecked me and they changed my dosage again up to 75. I have only been on that for less than two weeks but I have had major problems with headaches, exremly blurring vision to the point of not being able to read a text message because it was blurring and blacking out, tunnel vision all things that are not normal to me and are scaring me. I don't like the idea of this happening while I'm driving. I talked to the Dr today and they were concerned about my birth control and was worried there might be issues with blood clotting. I have been on the same birth control for over 8 years and have never felt like this except recently. I'm convinced it has to be thyroid related since that is the only thing that has changed. Has anyone ran into this or have any ideas? Thank you all so much in advance!

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  • Posted

    Hi - no wonder you feel like you do. This is a horrendous way to treat the thyroid. Changes in meds need to be gradual. Your poor body doesnt know whether its coming or going.. Our thyroid also relies on some important vitamins and minerals which should also be tested. Ideally your blood test should cover TSH, T4, T3, Ferritin, Folate, B12 and D. Sometimes all you need is some good supplements to feel better.
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    • Posted

      Thank you Jill I thought it was really strange to do auch a drastic change also! I'll have to get copies of all my test reaults to see what all they tested. You would think as many years as I have had thyroid issues I would know more about the tests smile
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  • Posted

    hey shute your thyroid wont know weather it's arther or martha getting treated that way! get your pills worked out and i'm sure within weeks you will be feeling different smile that's interesting what you were saying about the blurred vision ... i have latley been feeling a bit dizzy - almost a drunk feeling when i get up. have been wondering if it's my thyroid. i have recently had a blood test cause a level was high ... haven't heard back tho. good luck!
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  • Posted

    Thank you everyone. I picked up my lab results and from the change from 125 to 50 and after being on it for a while it looks like they tested me for the tsh and my range was 8.53 that is when they recently changed me to the 75. When they made the change from 125 to 50 my value for tsh was .30. I appreciate everyone's time!
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  • Posted

    Oh boy they are crazy results! Couldnt be more up and down.  I'm pretty sure (or hopeful at least) that they tested more than your TSH - there should be a figure for T4 as well. In an ideal world there would be a test for T3 but thats too much to expect lol At the end of the day its all about how you feel. If you are back to normal then whatever you are taking is right for you - no matter what the test says smile
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    • Posted

      I agree Jill I thought there should have been more. I had them give me my test results for the last couple of years and for the ones before it shows the t-4 but for the last two it didn't. I'll have to check with them tomorrow to see if they just forgot to give me the rest of the results for the last two. I felt a lot better when I was on the 125. I think the 75 has helped in some ways but I'm worse in others. I'm trying to get into a specialist but the one I tracked down today can't get me in till April. I made the appointment and am going to try to find someone sooner though because I can't stay like this.
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  • Posted

    I completely agree that you need better treatment - however dont get your hopes up with endos as they are often as bad as GPs. I was increased from 100 to 150 and became ill - the middle ground of 125 had been completely disregarded. I'm now on 125 and much better. I'm now fighting for T3 inclusion because no matter how much T4 (levo) they feed me T3 stays too low. Will pm you with some useful info.
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