Chemo brain
Posted , 5 users are following.
My mum has recently went through 4 week of aggressive chemo and radio treatment for cancer in her lung that was unable to be operated on because of where the tumour was so the only option was this treatment. She is 75 but when l say that she was a very fit and healthy 75 she still had a jib she was very clever and switched on. Her treatment finished 3 weeks ago and since then we new she would have side affects she was exausted as to be expected and for the 1st 2 weeks slept mostly and lost her appoetite. It looked as if she was getting over the worst of it when all of a suddon she became very confused and it was like she had alzimers she started thinking there was something wrong with her legs but after many tests there is nothing medically wrong with her. She seems to have all the symtoms of chemo brain x 100 . We realise now she is suffering from very bad anxiety thats basically took over the person she was. She is pacing the floor as her brain is telling her she can't sit down she gets very aggitated and has lost all her cognatuve brain funtions. No matter how much we try to talk her out of it she is not getting better. We have told the hosptal and her doctors but they don"t seem interested because its not anything medical. But right now we have lost our mum to this. We don't know what to do to help as its that bad she is not in control of her own mind and is acting like she has alzimers asking the same questions over and over. She is in lorazipaine vut at 1st they prescribed 1 tablet per day to be halfed. We have now been told to give her more because she is so bad but my dad is old school and does not beleive in giving her more even when she is asking because she can feel it coming on but he says no abd waits until she is to far into a panic attack that half a tablet is not really working. The familys at there wits end. Does anyone know someone who has had this reaction. Or what could help.
Thanks
Laura x
0 likes, 43 replies
lors23
Posted
Hi everyone
And hey renee my hip friend. Well its been a week and my mum seems to have started getting better. We though we were getting support from mcmillan last monday by her going into a hospice for some time as the mcmillan specialist accesed her and seen how bad she was and how bad her family were with stress. She promised us this great thing saying she was going into this hospice and would get the best care and they would put her on special tablets to help with her anxiety and depression and make sure she was eating this great homemade food and would be soeaking to the right people to try get her back to her old self. But we were let down completly..firstly they said they would come and access her again with a doctor from the place (l did not understand why when they had already accessed her and decided that was what she and us needed. They also told us to stop all her medication as they would control it in the hospice. They came out while l was not there and were brainwashing my dad saying 'oh she is so much better' and what a diffrence from last time we accessed you' and convinced my dad she was on the mend and would not need to go into the hospice. I was so angry as there was no diffrence in her at all but they convinced my dad who is suffering from exaustion as she wont go to bed and is up all night. I tried to contact them but kept getting answer machine and l was so angry in my messages l.left as l felt they had let my mum and dad down. It turns out there was no bed for my mum as the womans ward was getting done up si thats why they were saying all this and it was all lies. I said that on a message on the phone. The girl phoned my dad and told her l had not to call as she could not speak to me due to data protection yet it was me that arranged for her to come out. So since then she has been left and about 3 days ago she suddenly started getting slightly better. But today is another bad day she did not know how to dial my number. But l am hoping its just a bad day and she will be better tomorrow. My dad sounded a bit down tonight but she has been much better for 3 days and l had to start some of her medication fir heartburn and stuff that she was told to stop taking. There answer was if she gets anxious guve her a valium. Thats not help to me. I have totally lost faith in mcmillan after the lie we were told. Why not just say they had bo beds but instead tryed to make my dad think she was better. And its funny how they won,t talk to me now. But l am hoping she is getting better herself thats all l can do we have tried everything else.
Laura
Xx
renee01952 lors23
Posted
that is awful how they treated you and your dad ...
you are her daughter, so this whole data protection thing is bullocks !!!
praying for you that the right person will come at the right time ...
big warm hug
renee
PS Please take care of Laura -- she still needs tender loving care herself ...
lors23 renee01952
Posted
Aww. thanks renee you are always so kind. I have to say this has been one of the worst years of my life. I had 3 major operations myself still to get on knee replaced and my mums so ill and inbetween that my husband got a brain virus and l had the scariest 2 weeks of my life thinking l was ginna lose him as well. I thought at one point there can't be anything else that could go wrong. I thank the lord my husband pulled through as without him l would not cope with all this that has been through this year he has been my rock and also having this forum helped me through my 2 hip replacements and knee replacements. As it changed be as a person l lost the person l was l was icolated at home for so long and had my mum slowly getting worse. Thankfully l am getting better l don't really have a chance to think about the pain l am in as my mum has took priorty over everythingvand again l have no life . I just hope things get better next year. B
Laura xx
renee01952 lors23
Posted
dearest laura,
what a year it has been for you and how wonderful that your husband was there to support you ... you had to overcome so much - yourself, your husband's and your mother ...
how is your dad? -
don't think that you have no life ... you being here, loving and caring is such a gift ....
keeping you and your loved one in the circel of light and healing -
big warm hug
renee
lors23 renee01952
Posted
My dad is doing ok he is a diffrent person than he used to be as he used to be so quiet and could not text as my mum was the one that did everything. But my.dad has had to learn to take loads of calls from people asking about my mum and he has even learned to text to answer my mums texts. He lives on his nerves l thing but l think he has been getting more sleep the past week thank god. My mum was away for 2 ct scans today one on her lungs and a brain. Her appointment is monday so she will het results then. I am going but l am not sure how much we will find out about her cancer maybe something and hopefully good news. But we will see.
Thanks so much for asking renee
Love
Laura
Xx
lynda20916 lors23
Posted
Hi, Laura,
I hope the tests indicate that your mother is doing better. And, I'm glad that your father is getting more rest. How is your husband's recovery going? I am glad that this site has helped you. Try as much as you can to get the rest that you need and let worry about tomorrow fall away. You are doing the best that you can and certainly more than others could do in your place!