Chemo or Homeopathic treatment?
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My daughter was diagnosed a few weeks after her 3rd birthday in 2015 with nephrotic syndrome caused by minimal change diseas. We did a kidney biopsy roughly a year later after 2 or 3 relapses. About 3 months later she had another relapse. She has been off her medication for 3 weeks now and she had a rough 2 weeks with flu causing her to relapse. Now the Dr wants to try chemo therapy. I am slightly nervous going this route. I have looked into homeopathic treatment and apparently the success rates are high. Has anyone here gone that route and have a successful outcome? Or did chemo work better?
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cph zee67110
Posted
Hello. I'm sorry your daughter is poorly, and so young too. I'm afraid I can only speak from the point of view as an adult who has nephrotic syndrome caused by minimal change disease. I am on ciclosporin tablets, which has a connection with chemotherapy, but is most definitely not like full on chemo. It could be that, as a child, the doctors can offer a course of chemo to try to fix the nephrotic syndrome, but if they are still talking of managing it rather than fixing it, I wonder if they are referring to 'just' the medication. Has she been on steroids at all? It's just that my consultant told me that in children, there is a good chance that NS can be cured, and steroids/medication is what is tried. I was diagnosed as an adult, and those options didn't work for me. I have relapses from time to time and need steroids, but when being controlled, the ciclosporin usually works. I wish you and your daughter all the best. CPH
zee67110 cph
Posted
Hi. Thank you for replying. She has been on prednisone and one alpha on and off since the end of 2015. Her specialist said that the chemo treatment will happen over a 6 month period once a month. She will be booked in by the hospital for a few hours and get the chemo injection. So the chemo treatment won't be as intense as what a cancer patients will be but it is still chemo. Her poor immune system is already super low from the prednisone
cph zee67110
Posted
Definitely ask about medication, as there must be options for children to be on medication to control or fix the condition. Chemo just sounds extreme, and indeed, with suppressed immune system from the condition and steroids, it does sound extreme. I find that when I'm on the steroids my immune system is a little more protected, and my consultant has confirmed this. On the other hand, if it is once a month, it might be a similar treatment to the tablet form I am on, which i take twice a day, and have no chemo-related side effects, because it is a mild form/connection. Ask as many questions of your consultant as you need to, and ask for options to consider. Good luck.
jemj3ms zee67110
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zee67110 jemj3ms
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