Posted , 4 users are following.

Hello.. New to this. I am 49 and recently told by Neurologist that I have an 8 mm type 1 Chari. He says not to worry and most likely nothing will anything be done but I have had increasing headaches, balance issues but most concerning "brain fog" and my vision has gotten really bad in the last 6 months. I had an MRI 2 years ago and this did not show but an MRI in Dec 2016 it was there. Neurologist says incidental finding.. I have done research and it freaks me out. Am I overreacting or should I be concerned? Should I push for a NS consult? Thanks I appreciate any feedback good or bad!

0 likes, 6 replies

Report / Delete

6 Replies

  • Posted

    My advice is to see a Chiari specialist most NS don't understand all the symptoms of Chiari and tend to push off like we are overreacting. Get a second opinion and go from there. No symptoms can be debilitating and your right to be concerned. Good luck and be strong. 😊

    Report / Delete Reply
  • Posted

    Its the old story Neurologist v Neurosurgeon. Many Neurologist (medical) seem ignorant with the problems of Chiari as they are not surgeons and try to dismiss it. Push for a Neurosurgeon. Can I ask where you are?.
    Report / Delete Reply

Join this discussion or start a new one?

New discussion Reply

Report or request deletion

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up