Posted , 14 users are following.
I promised I would write again with an update after my surgery.... so, here I am!
I had my Chiari Decompression Surgery 12 days ago now.
Honestly, it was a hard choice to make, (I have 3 children & a wonderful husband too of course!)
I suffered for more than 7 years after my first diagnosis, many repeat MRI's and panic trips back to neurologists as my symptoms worsened.
Finally, last year, after thinking I had had a mini stroke, only to find out I hadn't- I knew it was time to take control- ditch the neurologists and find a Chiari specialist.
My "quality of life" was hugely being affected as the months went by.
I found an excellent neurosurgeon in Liverpool who is very familiar with Chiari.
I had my surgery, I am home now, doing well.
Yes, it hurts, yes, recovery will take time! But, my neurosurgeon was really pleased with how it went. My brain is slowly adjusting to the the new pressure & flow of fluid.
I was lucky & had no major complications & was well looked after by the NHS. While I was in hospital I met many other Chiari decompression patients, all with a different story to tell.....
I know to expect recovery to take some time. Each day at a time......
If I can offer anyone any support- please just ask....this forum helped me not to feel so alone and I would like to offer some help back in return.....
Will keep you all posted with my recovery-if you want?
Thinking of you all.....x
5 likes, 39 replies