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I was diagnosed with Chiari Malformation 1 in April of 2013. I was in 2 car accidents, the first in 2002 and another in 2004. The MRI'S that were taken for my neck and back problems that I received in the auto accidents, showed this disease. I was fortunate enough to find out why I was having so many symptoms that did not relate to my other issues in my neck and back. What breaks my heart are the patients that don't get the proper diagnoses of Chiari, for sometimes years, and once they do, they tell the doctors their symptoms, and they are told these symptoms don't relate to Chiari. After reading and studying this disease, I feel as though us Chiarians need to be ASKED what our symptoms are, and they should be calculated statistically so the doctors and patients TRULY understand what this disease is capable of.
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