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i thought i'd join this site as i am desperate for help and advice, i know nobody who understands how i'm feeling
Here is my story:
I am 23 years old and i was diagnosed with Chiari malformation Type 1 about 8 months ago, before the diagnoses i was having panic attacks all day and everyday as i didnt know what the symptoms were and it felt like i was dying, and i also thought i was losing my mind, like literally thought id have to be thrown into a mental hospital and sectioned it got that bad.
My symptoms include:
Sleep apnea ( i havent been diagnosed with this yet, i am getting it looked at)
i have not handled the situation well, i just want to feel normal and live a happy & healthy life.
How i have handled the diagnoses has altered my perspective and thinking patterns in a really negative way, it keeps me up at night and i am terrified.
I apparently don't need the surgery.
I just want to know, is there anyone else who feels this makes them so much more afraid to live, yet also afraid to die, it has intensified those anxieties for me
Please please please.. i need to know - can i still live a happy & long life with chiari? i feel like i am going to die and i dont want to i cant take it anymore.
What do you do to improve your life with chiari?
How do you see the positive side of it all?
Next week i am flying to greece with my best friend, i am excited, but also scared, scared because of the pressure on the plane.. will it cause damage to my condition? and also because i dont want to be a burden if i feel tired and dizzy.
I just want happiness.. i feel like i wont have that with any of this.
i am losing it :'(
2 years ago i had lost my boyfriend due to an overdose, these past few years have been awful for me, the diagnoses only made it all worse.
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