Posted , 3 users are following.
Hi all, my first post and after some general advice please.
As from last July I have had tinnitus. It wasn't until September I went to see my GP who referred me to an ENT specialist. I had a hearing test which confirmed some mild hearing loss and I was sent for an MRI to check for an acoustic neuroma.
I had to have to two MRIs, the first in January and another in March because I was told in the first the areas of interest to ENT weren't seen suffiently well enough.
Since the beginning of this year I have been getting continuous headaches that are pressure-like at the back of my skull. I also feel fatigued all the time, have difficulty sleeping and get occasional blurred vision and dizzy spells. On a couple of occasions I've experienced severe vertigo.
The second scan reported an indication of Arnold Chiari which i believe is another name for Type 1 and I have a 5mm herniation which they said isn't Chiari and is within normal limits and I shouldn't be getting any symptoms. Nonetheless ENT have arranged for me to go back and see them at the end of June. In the meantime my GP has ordered a blood test to check for anything else that might be causing my symptoms.
I feel like I'm stuck in limbo and no one is taking me seriously. From doing my own research between 3-5mm hernitation is considered borderline Chiari whilst other sources say 5mm and greater is considered a firm Chiari diagnosis. I also researched that the symptoms don't correlate with the size of the hernitation. I've read about a Cine MRI and I don't know whether I had that or not, I think unlikely as they weren't looking for that, it was simply an accidental finding on the MRI.
I'm worried that ENT don't know enough about this condition and the symptoms and that ideally I should be seeing a neurologist who is a Chiari specialist. Has anyone got any advice or experiencing anything similar to me?
1 like, 8 replies