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So, recently I got diagnosed with chairi 1 after looking for a tumor/anyeursm and I’m having surgery in a week. I’m terrified beyond measures but I’m curious about some things. Basically, in high school I had migraines, went away. But Now I’m 20 the past 2 years I’ve been a miserable person and I’m not who I use to be. Ear pain, sharp sounds I had tubes put in, got worse. Breathing issues, had deviated septum surgery, still bad. Bladder spasms/control issues, had surgery, still bad. Tachycardia out of no where. Severe nausea at least 3x a week. Personality changes, my memory is SO bad the past year, My legs feel so weak, I’m always exhausted, my eyes don’t focus (I have Duane Syndrome in my L eye) my legs and hands fall asleep easily. Just so many things, but I was curious because I’ve had unequal pupils for 10 months, responsive to light, and fluncuate, my syndrome in my eye doesn’t cause this and they say they don’t think chairi is causing this? Has anyone with Chiari experienced unequal pupils too? Also, I keep panicking and really need encouragement that I’m makig the right choice. I am only 20 and want a wonderful quality of life, to have a family, workout, finish nursing school, but I’m so scared and I’m tired of dealing with doctors, but now we’ve finally found the true cause and I just need hope/courage.
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