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Hey everyone, so I was diagnosed with Chiari in 2016 after I finally decided to go to my PCP and tell her that for a year my face, hands and feet were going numb along with headache, especially the ones that felt like I was getting hit with a bat in the back of the head when I coughed or laughed to hard and my neck was "locking" on me when I turned to fast to look another direction. CT scan and MRI showed Chiari Malformation. I was referred to a neurologist who recommended me to see a neurosurgeon however he is SO expensive and I don't have insurance, financially my family has been hit in every direction. So I've pushed it off. I'm currently on meds for the headache and neck pain. The neurosurgeon also doesn't accept any form of financial assistance program through the hospital. My job doesn't provide insurance. So how long can I go living this way without the surgery? My neurologist has recommended that I don't drive long distance anymore, because of my neck and that if I have a syncopal episode or get paralysis to get to the ER immediately. kinda sad, but I'm waiting for the day that I hit the floor for it to be the day I have surgery, as a person in healthcare I Know I can't get turned away then? But also I know it might be to late.
P.S I have tried to do what I can to get healthy, I workout, eat right, I've lost 56# and it's helped with some of my symptoms, like the balance issues, tingling in my feet and hands,the ringing and swooshing in my ears has significantly calm down. Unfortunately I still have a lot of other Chiari symptoms.
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