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My 8yr old son was diagnosed a year ago with ACS TYPE 1. He has had a hell of a year with MRI scans, daily migraines and stays in hospital. He has missed lots of school and is missing out on the fun side of his childhood because of this cruel and painful disease. His daily migraines are so bad ive had to buy him a blow up pillow to take whenever we go out so he can lie down!! He is on 2.5ml PROPANALOL x3 daily. the pain has been so bad iv been giving him 3 doses calpol daily to. the hospital is now worried in case its affected his liver! He is due anoth MRI in couple of weeks th see if theres any change. All i know is that he cant go on like this. Ive also had migraines 15yrs. Finally doctors sent me for MRI to see if i have ACS also. Awaiting results. This is my first post on this website, if anyone has a child with ACS and has a spare min for a chat, id be most grateful. .
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