Childhood Osteomyelitis, Long-Term Effects as Adult.

Hi Meg

Sorry to hear your husband is still suffering from the illness that keeps on giving. There is every chance he has had another attack of Osteo. I had Osteo in my left ankle, see 56 years of living with Oseto and its after effects. I have had several attacks since then and I stand no nonsense from the medical world as I loeave them in no doubt that it is another attack of Osteo and have been proved correct in all cases, today though with the powerful antibiotics its sorted in days rather than ftrhe years it took when I was a child of 9.  You dont say what your husband thinks it may be. Only people who have suffered will ever understand the level of pain that comes with it. Deseased bone pain is as painful as it ever gets.

Give my best wishes to your husband and let us know how he gets on. Mike.

Thanks for your reply. We are both so baffeled and no one in the medical profession seems to be able to give him an explanation or theory - nor do they seem to care. They just want to operate! We are trying to decide what to do next - and are going for a second opinion next week.

Good luck with it, dont accept when they say you can only get osteo once because that isnt true. Please keep us informed how you both get on. Mike..

Hi Meg, I am in total agreement with oldbruce, it can reoccur, it is savage and the pain excruciating. I had it at the age of 5, I am 48 now. I have been left disabled from it. It can be caused by either a blunt force action, or a trauma in a persons life. It does lay dormant in our bodies. Then will travel to either where the massive blunt force has occurred to the body. Or to a weaker part of the body.

Regards Elizabeth.x

the only thing i could get to kill the osteo because I am allergic to antibiotics is Asprin, 250 mg every 50 minutes for 4 hours as well as taking vitamin c tablets 10 minutes after the asprin will kill the osteo which is a microfilm bacteria.   repeat the next day if symptoms persist. 

the asprin kills the biofilm and the vitamin c attacks the bacteria.

The biofilm is a thick filmy slimy crust around the bacteria thats hard for drugs to penitrate to the bacteria cell.   a bit like a meatball covered in a protected slimy exteria.

 

I was 2 when I got Ostio. I had a boil on my backside and the nurse didn't change my nappie. There has to be an open wound for the germ to enter the body. My daughter had Ostio and Schumanns in the spine when she was about 13. The doctors were amazed I knew she had Ostio,I explained  i knew from how she described the pain, a trip to hospital and antibiotics fixed her without an operation. But she wore a brace for some time.

Hi Bruce, I got Ostio at the age of five. I had no open wound at all. I got kicked in the back of my heel in the playground. There were no outward signs that I had it. As a result of that fact, when I was in So much pain my mum and dad called for the doctor. I was lay on the cough, my mum holding my leg in an elevated position , even then every single movement from the vibrations just traveled to the back of my heel. The doctor who attended, he is no longer alive, told my mum and dad there was nothing wrong with her, if she wanted she could get up and dance around the room. As long as I live I will always remember his statement. At that he went. Well my mum decided to get me to put my feet in a bowl of radox bath salts. As a result of this all the back of my heel, when out of the water, looked like the colour and consistency of black currant jelly. My parents phoned for an emergency doctor, the same doctor came out and an ambulance was called. I was taken to hospital with the blue lights flashing. No one new what it was. I was put on a tonsil ward. To cut a long story short, as I have already put my story on here, my parents paid for a private doctor. He was a specialist , a bone specialist. He said I had Ostio. The disease had travelled up my leg and eaten my bone marrow away. I got told, years n years later. That it can be caused by a massive trauma to an area of the body, not nessaserily break skin, that can cause it. Apparently, some footballers have had it. But like you say it is treatable. But as mine went un diagnosed for a period of time, it was allowed to spread, resulting in me having lots of surgery. I nearly lost my leg. My foot stopped growing, my leg is shorter, it's thinner. My foot a size 1-1 1/2. My ankle a fused joint, the heel made from the skin of my left inner bottom leg. I'm not going on any further. This should give a bit of an insight into my dealings with it. I have had to have knee surgery, quite a few years ago. I have been left disabled because of Ostio, and nil diagnosis. There were no claims in my day, so that was that. Need I say anymore?

Jeanette, see my reply to Bruce's, as this will give you a bit of my dealings with it, and how it can be caused. And how it has left me forever disabled, and disfigured.

Regards liz

Same experience as you. 6 months old and undiagnosed at left hip. Gp told my mum she was been silly and neurotic. By the time it was diagnosed, my hip had been eaten away. Hip was then treated, drained etc, and then surgically fused. Also had leg length discrepancie, loads of awful operatilns till i wax 12 sand a life long hip fusion with all the consequences. Sadly even now gp's and hospitals still seem remarkably ignorant regarding this awful disease. Try my best to create more awareness a use diagnosing and treating early is the key to preventing the devastating destruction it can cause as we know only too well. Regards, Debra

Wow my daughter is 6 and has been dealing with osteomyelitis in her pelvic bone for the past 2 and half months.  The diagnosis was made pretty quickly but am concerned about leg length discrepancies as right now her leg is longer and they can't tell us exactly what her recovery will be.