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My daughter is 11 and 3 months into this, exhaustion, headache all the time, and frankly we're all finding it so hard to cope. Unclear about the best plan, trying to eat really healthy, trying to be in a routine, but nothing seems to be working and she's getting weaker and more depressed. I'd love to hear any positive stories, how I can help her, any quick recoveries or are we in this for months/years? Help. 8 weeks till next Specialist appointment and that's an MRI which I'm terrified for her to have to go through.
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