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Cholesteatoma 3rd surgery for my child in few days

Posted , 3 users are following.

Cindyl
Cindyl

My 8 year old daughter was diagnosed with cholesteatoma in March/2017. That's when the first surgery was performed. Over 3 hours -and many bones had to be removed  including the support around the facial nerve. She was left unable to hear out of her right ear.  We thought the 2nd surgery that followed in October would be for prosthesis. However, when the dr went in there were 2 places and one was directly wrapped around the facial nerve. She is having her 3rd surgery may 1st in a few days.  The dr did not think he got it all around the facial nerve last time. As a mom I am scared but trying to reassure her it's going to be okay. She is the oldest of my 4 kids. I found this forum unable to sleep in the middle of the night. I am from Alabama. 

Cindy

0 likes, 3 replies

3 Replies

  • greg01
    greg01 Cindyl

    Posted

    I had my surgery done in Atlanta the doctors name was Jennifer tirino she did an excellent job with me 3 yrs ago it took about five hours mine to was wrapped around the and under my jaw I lost taste sensations and even with new prostetics I can't hear out of my left ear. I had a bone conduction hearing aid placed that works great. Hopefully your little one won't need that it has it's drawbacks with swimming and getting it wet.

    • Cindyl
      Cindyl greg01

      Posted

      Hi! Thank you so much for your reply. I was a very worried mama. My daughter had her surgery a week ago and thank goodness there was only a small place that had to be removed. The facial nerve was finally pristine good he said. He went ahead with prosthetics but a lot of packing had to be used. She feels great. No hearing yet but it may take time. We can always try other things. Just thankful after 3 surgeries it is finally gone. She used to be very involved in gymnastics but we had to stop. She gets dizzy very easily now. Do you have trouble with dizziness? 

      Thanks,

      Cindy

  • rajesh91064
    rajesh91064 Cindyl

    Posted

    Please choose your doctor well. It's all about getting the right person with experience. Most of the doctors have limited experience and skills.

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