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Has anyone experiene a recurrent cholesteatoma in one ear and now a cholesteatoma in the other?? If anyone can relate to what I've got below, any advice or help would be much appreciated...
Here it goes:::
I experience chronic pain and chronic migraines as a result of the 3 surgeries I've had in my right ear. I have severe tinnitus. So severe, that there are times when I literally cannot hear anything around me. Another thing is that sound gets extremely distorted should a voice or sound be too high or too low - you can imagine how difficult this is being a PreSales IT Architect who speaks with a number of people every day.
Also, my right eyelid and right side of my face fall a little lower than my left. In addition to this, I feel pain outside the ear as well and in the muscle that has been relocated three times for each surgery. This causes me pain when I simply move my head in any direction...even when I make facial expressions. Dizziness and vertigo are almost a daily occurence with some days worse than others...It feels like the room is in a blender. Driving is also becoming incresingly difficult as I often feel like the car is still moving when I come to a stop and vice versa....It's a laundry list of things, I know.
I now have a cholesteatoma in my LEFT ear with my 1st surgery on that is on 11/13/15.
Anyway, feedback, discussion, questions are all welcomed...I could use the support
All the best,
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