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Hi everyone I have a few questions about this horrible disease but first of all if it helps anyone to get it detected quicker I will try explain my past troubles with my ear.
Ever since I was a kid I have always had problems with my left ear I even remember vaguely going to see an ENT at about the age of 4 and on my mum on his recommendations to use warm olive oil in my ears. Ever since then until about the age of 16 to 17 I was constantly having ear infections I would say about 3 or 4 a year, all of a sudden though around the age of 16 or 17 I stopped getting them as frequent maybe one a year at the most. For the last 3 years though (I am now 31) my infections in my ear seemed to be picking up again speacially after going abroad and doing a lot of swimming. As I had never heard of cholesteatoma I never thought once it was anything that would need an operation I just went to the doctors got some drops and thought nothing else of it. Last year I had my usual summer holiday away with my family and did a lot of swimming with my son only to get on the plane home and feel a weird sensation in my left ear, not painful but just weird and unusual. I went back to work like normal a few days later but noticed my hearing was a bit quieter with a bit of pain. Thinking I had another infection I went back to the doctors and was told I was correct and given some drops, about two weeks later drops finished ear worse I went back once again to the doctor to be prescribed oral antibiotics. After this course the pain had gone but my ear was still muffled. Now rolls on another few weeks thinking my hearing will come back it is just blocked still, my ear starts to discharge some nasty stuff so once again a trip to the doctors. This time it seemed like my doctor was getting p*ssed off with me and basically printed me out another prescription without looking in my ear and said take them drops it will get better. Obviously I take his advise and nothing got better at all infact my ear started leaking blood and one morning it was hurting me so bad I decided to forget the doctor and go straight to A and E, where I was told I had a burst ear drum with a bad case of otitis media but was guaranteed it was nothing to worry about my hearing will come back and was sent away with yet more drops. After about another month or two I had had enough rang the hospital to see if I could see a specialist which I was told would have to be made through my GP, I went to see my GP and told him bluntly I want to see an ENT reluctantly he made me an appointment. On my first appointment my ENT told me straight away that he thinks it is cholesteatoma now I am waiting for surgery.
I know I waffled on about that their but my story is to try get someone going through the same and not being listened to and feeling like they are going in circles to demand to see an ENT.
Right now my questions to people who have had this before or currently have it.
Is it normal to be feeling headaches on the side affected that sometimes moves up to the middle of the head?
Did it make your hearing in that ear worse after surgery?
What was the pain like? Did you need pain meds or was it bearable after surgery? I hate taking any form of pain medication I would just rather take the pain or is it too bad?
Can you feel where they have drilled in to your bone after?
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