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i have bilateral cholesteatoma and had one op in January 2015 on right ear to remove the sod ... It is also present in the L ear and I am due to have another op in July as my hearing has lessened by 10% in 3 short months in said ear! and that was my good ear .....
To say I am a little p*ssed off about it is an understatement. NOT about the disease I have but about people's reactions to my deafness.
The shaking of heads when I ask them to repeat what they said, then the way they talk like me like I am a simpleton when they repeat it, the LOOK ( hard of hearing peeps will know this look!), that they give because of the energy it must take the lucky sods who aren't deaf to repeat what they said. And the saddest thing ... The way I am left out of conversations because I am not worth the higher volume in their speech or they just shove the subtitles on TV cos that will make it better!
Welll .... I am a a tough one (Manchester gal gutted this has happened to me as only 46 years young) and ain't putting up with feeling guilty for my, not asked for, deafness any longer! I feel isolated and subject of jokes at home and work. Would they take the Michael out of the blind or other disabilities? Doubt it!
Audiology on Tuesday for hearing aid fitting then onwards n upwards!
To all been newly diagnosed - the op is fine, not too painful, you will be fine.
Rant over for now
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