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cholinergic urticaria

Posted , 9 users are following.

bill68859
bill68859

if a dermatologist or allergist cannot determine what is causing someone to have cholinergic urticaria, then who or what can????????  assuming that it could be determined what is causing someone to have this condition, can it be cured once and for all or can it only be treated????  can someone who has this condition or knows something about this condition please tell me.  thank you. 

0 likes, 12 replies

12 Replies

  • marcus_Jackson
    marcus_Jackson bill68859

    Posted

    Hi Bill!

    I went to an immunologist/allergist at Nuffield health, Guildford and just paid for a private specialist. If I were you, get referred by your gp and get yourself diagnosed first. Then it is pretty much a process of figuring out what your triggers are, and eliminating them one by one. I am almost 100% sure that you need to fix your immune system - so getting on track to a healthier lifestyle is the first step to a cure.

    Marcus

    • marcus_Jackson
      marcus_Jackson bill68859

      Posted

      Sorry for the Short message. Brief history - I've been with hives/oedema for almost 3 years so been there and done that with pretty much everything....almost lost my life a few times rolleyes

      Dermatologists are not anything to do with you immune system. Immunologists/allergists will help you with hives etc...food is a fairly important factor in terms of how your health is wouldn't you say? If you have a frantic and majorly stressful life, are tired a lot and feel run down, get colds a lot and have maybe had the flu recently they will be true signifying factors in hives. I would cut out fatty/generally unhealthy foods, alcohol, smoking (weed/cigarettes) entirely for the initial period to calm it down and start taking fexofenadone 180mg twice a day.

      I would say if you currently over eating or over drinking/smoking to compensate a busy/stressful life this can be a cause of hives if it has been going on for a while.

      What kind of problems have you been having?

      Marcus

    • bill68859
      bill68859 marcus_Jackson

      Posted

      ive had cholinergic urticaria since 1997 and want for someone to tell me what is causing me to have it???????????????????????  rsvp. 
  • Sue_boo
    Sue_boo bill68859

    Posted

    I have hives daily for two and a half years, tried prednisone , antihistamines and am getting  treatment of Xolair...kinda scary but think it is working, slowly ...praying for some relief....it gives me some comfort to know I am not the only one...

     

  • JCH187
    JCH187 bill68859

    Posted

    I'd go the immunology/allergy clinic route, I found the dermatologist useless. They need to rule out certain conditions so you'll have allergy and blood tests but sometimes there is no known cause (they call it Idiopathic Urticaria). Most times there is no cure it will just burn itself out in time.
  • lorraine34338
    lorraine34338 bill68859

    Posted

    Hi, Marcus is right. I went to a great CIU specialist called Dr Sabroe, she is a dermatologist as well but also specialises in Urticaria. She can be seen at Sheffield Hallamshire Hospital and only takes NHS referrals. The first specialist I paid to see was very good and put me on the right meds but admitted he knew very little about Urticaria which is why he referred me to Dr Sabroe is one of the best in the UK with regards to our condition. Good luck
  • gina27260
    gina27260 bill68859

    Posted

    I've had hives for about 4 months. First noticed them in the summer on my inner thighs and arms. I took piriton syrup which seemed to keep them at bay but not stop them completely. I began to notice the trigger which is heat and sweat. I started running and break out in hives shortly after a run. The gp put me on fexofendine 180mg but i only took 2 tablets as i got stomach ache. I went back to piriton syrup which just keeps them at bay and in the meantine I have seen a dermatologist who said my return to exercise has triggered them and my pores are blocked and need to continue exercises to sort the problem out. He recommended I go back to the fexofenadine. I took one tablet this morning and had the worse breakout ever! All over my neck and arms and body - it was horrible! They don't seem to itch the way others describe. Luckily I work in a hospital so went straight to urgent gp who advised me to take the piriton. It has taken all day to combat the fexofenadine. I'm pretty healthy in everything else - don't smoke, only drink very ocassionally, eat well. Have a bit of stressful job but try not to let it effect me. Just want this horrible condition to go. sad
    • lorraine34338
      lorraine34338 gina27260

      Posted

      Hi Gina

      When a person exercises the seams on the inside of legs and arms can chafe if you are not careful. You might not even be aware of it at the time. Chafing in those places was a trigger for me. I made sure seams were sewn down or covered (sewn over) with soft fabric and thread. I spent hours doing this on my clothes and it helped a lot. Also use anti-chafing cream on those places silicon based is best. Goodluck

  • mh96526
    mh96526 bill68859

    Posted

    PLEASE READ - THIS WORKED FOR ME

    Please try taking 1 antihistamine (like Zyrtec) AND 1 antacid daily. I had severe hives for two years following my hysterectomy. Sometimes my feet would swell so much that I had no arch and my skin would split. My hives were caused by pressure, stress, heat, you name it. Once I started taking both the antihistamine and the antacid together every morning, I stopped having hives after a couple of weeks.

    From what I understand, those individuals with chronic urticaria need to block both the h1 histamines and the h2 histamines. H1 histamines are blocked by the allergy type of antihistamine and h2 histamines are blocked by antacids.

    I took that combination for 9 years with great success. Zero issues with hives. Now, I don't have to take either.

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