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choroidal melanoma

Posted , 3 users are following.

ahmedrasha
ahmedrasha

hii

my wife 36 years old used to complain of weak vision to near object from her left eye since long time. recently she started to see an area of blurred vision when using left eye only together with difficulty in reading and using her cell phone. 2 days ago we went to ophthalmologist who did examine her eye and said that she had a lesion in her retina near to the macula (center of vision) and he did another eye scan called oct then he refferred us to vitro-retinal surgeon as he suspected eye cancer MELANOMA.

I AM SO MUCH WORRIED SINCE THEN

anyone had such experience and is it common in that age..she is realy young for this

thanks in advance

0 likes, 9 replies

9 Replies

  • mjcg
    mjcg ahmedrasha

    Posted

    I'm so sorry that your wife is faced with this diagnosis. I have no knowledge but would advise, of course, that she continue to seek as much information as she can from the retinal specialist and any other professional she meets. Don't be shy about seeking a second opinion either. She is lucky to have you by her side and I wish you both the very best.

    • ahmedrasha
      ahmedrasha mjcg

      Posted

      thanks alot my dear plz pray for us. we are going to take second opinion i hope we will have a diffrent diagnosis

  • erika123
    erika123 ahmedrasha

    Posted

    hi, i was diagnosed at 36 years old with chroroidal melanoma. thats not"old" people illness anymore as says statistics.

    seek all options possible. i had radioactive plaque for week, my vision still excellent . hope your wife is ok? its mentally bumpy road, but its doable .im sure profesional ocular oncologist will explain everything and help you trough everything. any questions, please not be afraid to ask,

    best of luck xx

    • ahmedrasha
      ahmedrasha erika123

      Posted

      thanks alot erika 123

      i hope you are doing very well now after brachytherapy.

      may question is ...how large was your melanoma ..her wad 6.8 in thickness 10 in basal diameter?. another thing ..did you experience any side effect following brachytherapy

      thanks alot

    • erika123
      erika123 ahmedrasha

      Posted

      mine was 5,6 tick and basal diameter 14.now just flat scar

      i honestly never felt phisical pain even with plaque. its uncomfortibe but not painful. i do have sometimes dry eye feeling, but drops sorting it. only side effect was left dropy eyelid,but got it fixed year latter. im doing really well. as a fact just yesturday got my results back from mri, im clear 😃

      its very important to have folow up plan. recomendations to have at least one liver mri every 6 mth. because om mestatasis usualy first place is liver. so its important to keep eye on it.

      be supportive , it is traumatic to her, but there is life after that.

      sending lots of love and strenght to both of you xxx

  • erika123
    erika123 ahmedrasha

    Posted

    and by the way if you or wife has facebook look for ocular melanoma groups. there is uk usa and few more private groups. lots of helpful people with amazing amount of knowlige.its helped me a lot and biggest support from people who went the same path.

    again wishing all the best.

    happy to answer any of your questions

    • ahmedrasha
      ahmedrasha erika123

      Posted

      dear Erika 123

      we are very lucky to meet someone like you ...thank you very much and i hope you the best in your future..

      i still have some quest

      they said that her vision will be much affected as the lesion is near to the macula......is there other solution?....also where did you do brachytherapy and when and by which material?...and about the metastatic workup for how long you will continue doing 6 monthly mri..

      sorry for the big list of questions

      thanks alot

    • erika123
      erika123 ahmedrasha

      Posted

      no problem at all! glad to be helpful in some way. been there, so i know how scary it is.Unfortunate if is lesion closer to the optic nerve, more vision is affected .mine was sitting on top in chroroidal.doctor was warning that my vision will go down due the radiation later.

      its traumatic, but in many cases people have taken out poor eye. and ajusting there lifes.im afraid that not so many options to safe vision 100%but there is some shots, so im sure if its beneficial doctor will prescribe.

      im in Ireland , so was treated here. had ruthenium seeds in my plaque.

      will have my scans for rest of my life.becouse the risk never go down. its important to have oncologist on your saide. i asked mine to keep alive as long as possible.having 3 young children biggest worry .mine oncologist been amazing and i trust him fully.

      dont want to scare you, there is many people who still alive and well 20-30 y after treatment .

      do you have a date and plan for treatment?

    • ahmedrasha
      ahmedrasha erika123

      Posted

      dear erika123

      still no date for treatment because the experience her in Egypt is still growing. they said they did it before wotj Ru106 li contacted Moorefield eye hospital in london and still preparing we just did orbital mri and PET CT scan waiting for result do you recomend any place

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