1. Community
  2. Bones, joints and muscles
  3. Fibromyalgia Syndrome

CHRISTMAS PRESENT TO MYSELF

Posted , 3 users are following.

LUBYLOO
LUBYLOO

Well xmas cometh once a year , and by the letters of cancellation that keep dropping thr my letterbox looks like my appt with the consultant will be just as long !!!!!!

Physio appt is in January , but had a letter today to cancel my appt for March ( that was long enough) but now its the end of April my patience is running out !!!!!!

So whilst struggling round i spied in the Charity shop a wheelchair , got my Daughter to give me a ride in it whilst in the shop , so I think i will go back tomorrow and treat myself to a xmas present , cos the way the appts are going I am going to need one , I am really struggling to get around in the house my muscles just do not respond, so doing anything is difficult , but i wont give in , feel sorry for my family as my temper sometimes gets the better of me with frustration , but they take it all in their stride , and my grandaughters just say "has nanny got one of her heads on today " and just laugh .

I wish you all out there a very happy xmas and also a pain free one (if thats possible )

God bless x

1 like, 4 replies

4 Replies

  • leeanne35
    leeanne35 LUBYLOO

    Posted

    Hiya good for you I know only to we'll how u feel I struggle on a daily basis even with light duty like hovering I go to my pain clinics every week but spend 3 days in bed after due to the pain iv got occupational therapist physio therapist iv got walking stick scratches a perching stool a frame around the toilet and have just had the go ahead for a walk in shower the council tried to move me out ov my flat but was unable to fine a place suited for me every day is a big struggle and I feel for everyone who has it there r so many ppl that say there is nothing wrong with u it is a invisible illness just wish ppl could take my pain for one day and see how it is good luck with ur wheel chair and have a merry Xmas x
    • LUBYLOO
      LUBYLOO leeanne35

      Posted

      I had the guy around from the Council to measure up my bathroom , I was surprised that he said it would be a wet area with a shower curtain and the area not as long as my bath !!!! , not sure how this will suit  but I shall await his plans and see .
    • leeanne35
      leeanne35 LUBYLOO

      Posted

      I'm waiting on a start date I live in a first floor flat so surprised there fitting a wet room hope all goes OK for u x
  • PiliPalaB4ch
    PiliPalaB4ch LUBYLOO

    Posted

    I can so empathise with you. I was referred to the rheumatology consultant to verify that I have Sjorken's syndrome along with my fibro. I was delighted when my appointment was made for Dec 9th. The week before this was cancelled and I was asked to contact the appointment centre to make a new appointment, the earliest I could have was January 12 th, not too bad. A letter was sent out to confirm, the following day a letter came to cancel this appointment and asking me to contact the appointment centre again to re book. This was duly done, but this time I was told they couldn't re-book, and as it was a Saturday, would I phone back on Monday, when they had a chance to speak to the consultant's secretary. When I phoned back, I was given an appointment for May the 17th!! Apparently, the rheumatology department are not taking any more new patients until then! In the meantime, I am expected to wait patiently and put up with the symptoms!!! 

    I just wait for the next cancellation! 

    Sorry, rant over!

    I too would like to wish you a happy Christmas and as comfortable and pain free one as possible. X

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.