Posted , 4 users are following.
I'm quite new here I posted about 8weeks ago and had lots of help and support do thank you to all that replied.
I don't know if I should have added this to my original first post but wondered if anyone can give me their help or suggestions...
Sorry if this gets long I don't seem to do anything in a straightforward way with my health anymore.
I have after many years of pain diarrhoea and fatigue got a diagnosis of terminal ileum crohn's and functional gut disorder. One of my main difficulties is that I have become unable to take oral iron or any vitamins (also can't take oral antibiotics) as if I do they cause me extreme pain and diarrhoea and feel like I'm in what I now know to be a flareup.
Years ago I could take spatone iron plus and used to take vitamins no problem.
Now it is much different and I have to have iron infusions in the day unit. The problem is that during the time it takes to establish my iron is low and for me to get an infusion the time can vary quite a lot and I feel very unwell during this time. I also am now wondering why I seem to drop suddenly within a few weeks? My consultant told me my bloods show a pattern of dropping fairly quickly is that caused by crohn's or could it be another problem?
My symptoms are made worse by the fact that my b12 has become low again after the injections being stopped now at 177 I've had a b12 injection but can only have 1 every 12 weeks which I don't think is enough and doesn't follow the nice guidelines of treating neurological symptoms with loading doses until no further improvements.
Also as I cannot take oral folic acid ive tried liquid and tablets my folate levels are now 3 which is lower than before.
Sorry for the long post and thanks so much if you have any advice or suggestions. I have an occ health appointment tomorrow and after my last meeting in work it looks like I will not be able to continue with my job although they are very supportive I've been on a career break for a long time now.
Thanks for reading this
Take care x
0 likes, 5 replies